# Cdkl5 Forum > A collaborative forum for CDKL5 disorder research and therapeutic development. (iPhone/iPad app by Loulou Foundation.) - Source: https://appshunter.io/ios/app/cdkl5-forum/id1187671519 (this page in markdown: same URL + `.md`) - Developer: [Loulou Foundation](https://appshunter.io/developer/1187671518) - Category: Medical - Price: Free - Rating: 5.00/5 from 1 App Store ratings - Age rating: 12+ - Requires: iOS 11.0 · 65 MB - Languages: American English, Dutch, French (France), German (Germany), Italian, Brazilian Portuguese - Released: 2016-12-28 - Data updated: 2026-07-04 - Monetization: free - User reviews in markdown: https://appshunter.io/ios/app/cdkl5-forum/id1187671519/reviews.md ## What is Cdkl5 Forum? CDKL5 stands for cyclin-dependent kinase-like 5, a protein whose gene is located on the X chromosome. The CDKL5 gene provides instructions for making a protein that is essential in forming the connections for normal brain development, with mutations causing a deficiency in the protein level. Most children affected by CDKL5 deficiency disorder (about 90 percent of whom are girls) suffer from seizures that begin in the first few months of life. Most cannot walk, talk, or feed themselves, and many are confined to wheelchairs, dependent on others for everything. Many also suffer with scoliosis, visual impairment, sensory problems, and gastrointestinal difficulties. CDKL5 mutations have been found in children diagnosed with cerebral palsy and autism, among other conditions, and the disorder had been previously thought of as an early onset seizure variant of Rett Syndrome, though it is now recognized as an independent clinical entity. Mutations in the gene are usually spontaneous occurrences, rather than inherited, and physicians do not yet know the full range of CDKL5 disorders. There are currently more than 1,200 diagnosed cases of CDKL5 worldwide, with the number of identified patients increasing daily as genetic testing for the disorder becomes more common. The CDKL5 Forum is a unique community of collaboration and knowledge exchange, made up of leading scientists, clinicians and company representatives from around the world, united in the mission of better understanding the CDKL5 gene and disorder. The objective is to share current research on CDKL5 and to stimulate peer-group discussion and brainstorming around existing and future avenues of research and therapeutic approaches, in order to accelerate treatments and ultimately find cures for this neuro-genetic disorder. The CDKL5 Forum is a project of the Loulou Foundation. ## Key features - Knowledge exchange platform - Scientific collaboration - Therapeutic approach discussion - Research sharing - Community for experts - Accelerating cures ## Frequently asked questions about Cdkl5 Forum ### What is the CDKL5 Forum? The CDKL5 Forum is a specialized community designed for scientists, clinicians, and company representatives to collaborate and share knowledge regarding the CDKL5 gene and its associated deficiency disorder. Its primary objective is to accelerate research and the development of therapeutic approaches. ### Who developed the CDKL5 Forum? The CDKL5 Forum is a project developed and maintained by the Loulou Foundation. This foundation is dedicated to advancing the understanding and treatment of the CDKL5 deficiency disorder. ### What is the CDKL5 deficiency disorder? CDKL5 deficiency disorder is a rare neuro-genetic disorder caused by mutations in the CDKL5 gene, which is crucial for normal brain development. It often leads to severe seizures, developmental delays, and other significant health challenges, primarily affecting children. ### Is the CDKL5 Forum available on multiple devices? Yes, the CDKL5 Forum is supported on iPhone, iPad, and iPod devices. This broad compatibility ensures accessibility for a wide range of users within the medical and scientific community. ### How often is the CDKL5 Forum updated? The CDKL5 Forum was last updated on October 26, 2024, with version 8.0. This indicates a commitment to ongoing development and maintenance to ensure the platform remains current and functional. ### What is the age rating for the CDKL5 Forum? The CDKL5 Forum has an age rating of 12+. This suggests that the content and discussions within the app are considered appropriate for users aged 12 and above. ### Does the CDKL5 Forum have ads? No, the CDKL5 Forum does not contain advertisements. As a free platform focused on medical research and collaboration, it provides an ad-free experience for its users. ### What is the user feedback on the CDKL5 Forum? Based on available data, the CDKL5 Forum has received a rating of 5.0 stars from 1 rating. This indicates a highly positive initial reception from its users. ## Version history (last 5 releases) ### 8.0 — 2024-10-26 New event updated ### 7.0 — 2023-11-04 Updated to latest event and OS compatability ### 6.1 — 2022-11-04 UI Enhancement ### 6.0 — 2022-11-02 Updated to be compatible with latest os versions ### 5 — 2020-08-06 UI Enhancement ## Apps similar to Cdkl5 Forum | App | Rating | Price | Category | | --- | --- | --- | --- | | [DocMatter](https://appshunter.io/ios/app/docmatter/id716069146) | 4.5 (20) | Free | Medical | | [MGB Health Plan On Demand](https://appshunter.io/ios/app/mgb-health-plan-on-demand/id1375703183) | 2.6 (5) | Free | Medical | | [Veeva Snap](https://appshunter.io/ios/app/veeva-snap/id1300703916) | 4.3 (6) | Free | Medical | | [Neurosurgery: What's the data?](https://appshunter.io/ios/app/neurosurgery-whats-the-data/id937329312) | 4.8 (91) | Free | Medical | | [World Medical Innovation Forum](https://appshunter.io/ios/app/world-medical-innovation-forum/id1370037429) | 5.0 (1) | Free | Medical | | [Persyst Mobile](https://appshunter.io/ios/app/persyst-mobile/id1177132835) | 5.0 (3) | Free | Medical | --- *Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-07-04.*