# followME Fabry Registry

> followME Fabry Registry (iPhone/iPad app by New England Survey Systems, inc.)

- Source: https://appshunter.io/ios/app/followme-fabry-registry/id1354429280 (this page in markdown: same URL + `.md`)
- Developer: [New England Survey Systems, inc](https://appshunter.io/developer/1076403497)
- Category: Business
- Price: Free
- Age rating: 4+
- Requires: iOS 9.0 · 6 MB
- Languages: American English
- Released: 2018-04-27
- Data updated: 2026-05-17
- User reviews in markdown: https://appshunter.io/ios/app/followme-fabry-registry/id1354429280/reviews.md

## What is followME Fabry Registry?

In participating in the followME Registry, not only are you a Pathfinder, you are also an ambassador for Fabry disease – thank you for being willing to share your journey. followME is a disease registry that will track the health of people living with Fabry disease over time. The goal is to evaluate how different types of disease management affect people living with Fabry. followME will gather and ultimately share data that can be used to support the broader Fabry Community. As part of the registry, you will be asked to fill out Patient Reported Outcomes (PRO) surveys using a secure website, smart phone or tablet. These systems are validated and secure, meaning that no one outside of the registry can access your data.


## Version history (last 5 releases)

### 1.0.0.4 — 2023-07-22

minor update for iOS compatibility

### 1.0.0.3 — 2019-09-20

iOS 13 Update

### 1.0.0.2 — 2018-05-05

Updated alert text

### 1.0.0.1 — 2018-05-01

Updated icons

### 1.0 — 2018-04-26

No release notes.

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## More apps by New England Survey Systems, inc

- [NEForm](https://appshunter.io/ios/app/neform/id1076403498)
- [NEDental](https://appshunter.io/ios/app/nedental/id1083156121)
- [PSoHO](https://appshunter.io/ios/app/psoho/id1333100798)
- [NEForm SMA](https://appshunter.io/ios/app/neform-sma/id1415628637)
- [PedMigraine](https://appshunter.io/ios/app/pedmigraine/id1498389182)

All apps by New England Survey Systems, inc: https://appshunter.io/developer/1076403497

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*Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-05-17.*
