# FOP Registry — Patient-Driven Data for a Cure

> Patient-driven data collection for FOP research and therapy development. (iPhone/iPad app by INTERNATIONAL FOP ASSOCIATION.)

- Source: https://appshunter.io/ios/app/fop-registry/id1486221531 (this page in markdown: same URL + `.md`)
- Developer: [INTERNATIONAL FOP ASSOCIATION](https://appshunter.io/developer/1486221530)
- Category: Medical
- Price: Free
- Rating: 5.00/5 from 1 App Store ratings
- Age rating: 4+
- Requires: iOS 13.0 · 33 MB
- Languages: American English
- Released: 2019-11-14
- Data updated: 2026-06-24
- Monetization: free
- User reviews in markdown: https://appshunter.io/ios/app/fop-registry/id1486221531/reviews.md

## What is FOP Registry?

The FOP Registry is the largest and most in-depth collection of FOP clinical and medical information and is independently operated by the IFOPA. The FOP Registry serves to help clinicians and researchers better understand FOP in order to accelerate the development and availability of disease-modifying therapies, and is also a great resource for practitioners to publish and help elevate awareness about this rare disorder.
 
Participants’ contributions, like yours, help the Registry to fulfill our mission. Anyone living with FOP is eligible to participate by entering information every 6 months. Doctors can also participate in the Registry by entering in their patients’ clinical information. 
 
The IFOPA believes there is power in numbers, and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies.

## Key features

- Patient-driven data collection
- Clinical and medical information
- Accelerates therapy development
- Resource for clinicians and researchers
- Supports rare disorder awareness
- Regular contribution intervals


## Frequently asked questions about FOP Registry

### What is FOP Registry?

FOP Registry is the largest collection of FOP clinical and medical information, operated by the IFOPA. It helps clinicians and researchers understand FOP to accelerate therapy development and serves as a resource for practitioners to raise awareness.

### Who can participate in FOP Registry?

Anyone living with FOP is eligible to participate by entering information every six months. Doctors can also contribute by entering their patients' clinical information.

### What is the goal of FOP Registry?

The goal is to provide a comprehensive insight into FOP through the contributions of physicians and individuals living with the disorder. This enables further research efforts and opportunities to develop therapies.

### Is FOP Registry available on multiple devices?

Yes, FOP Registry is supported on iPhone, iPad, and iPod, making it accessible across various Apple devices.

### How often is FOP Registry updated?

The latest version of FOP Registry is 1.8, and it was last updated on January 29, 2026. This indicates a commitment to ongoing development and improvements.

### What is the age rating for FOP Registry?

FOP Registry has an age rating of 4+, making it suitable for a wide range of users, including children and adults.

### Does FOP Registry have ads?

No, FOP Registry does not contain advertisements. It is a completely ad-free application.

### What is the user rating for FOP Registry?

FOP Registry has received an excellent rating of 5.0 stars from one review, indicating high user satisfaction.

## Version history (last 5 releases)

### 1.8 — 2026-01-29

Minor Bug Fixes.

### 1.7 — 2026-01-23

Minor Bug Fixes.

### 1.6 — 2025-08-28

Bug Fixes.

### 1.5 — 2025-06-05

Minor Bug Fixes.

### 1.4 — 2024-11-06

Minor Bug Fixes.

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*Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-06-24.*