# NORD® IAMRARE® — Enroll in rare disease studies > Connect with rare disease research studies and contribute data. (iPhone/iPad app by THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC.) - Source: https://appshunter.io/ios/app/nord-iamrare/id6736968218 (this page in markdown: same URL + `.md`) - Developer: [THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC](https://appshunter.io/developer/1500484222) - Category: Medical - Price: Free - Rating: 5.00/5 from 3 App Store ratings - Age rating: 17+ - Requires: iOS 13.0 · 56 MB - Languages: American English - Released: 2025-09-11 - Data updated: 2026-06-07 - Monetization: free - User reviews in markdown: https://appshunter.io/ios/app/nord-iamrare/id6736968218/reviews.md ## What is NORD® IAMRARE®? Developed by the National Organization for Rare Disorders (NORD®), the IAMRARE® platform allows you to find and participate in available rare disease studies and registries. Whether you or your loved one has a rare disease, you can take surveys and contribute data that could help advance research. Built with patients and caregivers in mind, the IAMRARE platform allows you to: • Transition between your computer and your mobile device • Opt-in to receive survey notifications that appear right on your device • Answer questions and upload selected health records • Work at your own speed by saving your progress and returning later • Review and save your responses to keep track of your health information • View graphs and charts to better understand your rare disease community The IAMRARE platform is secure and follows strict guidelines to ensure your data is protected. It supports English, Spanish, and French, with additional languages to come. ## Key features - Find rare disease studies - Participate in registries - Contribute data via surveys - Upload health records - Save progress and resume later - Receive survey notifications - View community data visualizations ## Frequently asked questions about NORD® IAMRARE® ### What is NORD IAMRARE? NORD IAMRARE is a platform developed by the National Organization for Rare Disorders (NORD) that allows individuals with rare diseases and their caregivers to find and participate in rare disease studies and registries. It facilitates data contribution through surveys and the upload of selected health records to advance research. ### Is NORD IAMRARE free to use? Yes, NORD IAMRARE is completely free to download and use. It does not have any in-app purchases or require a subscription fee for participation in studies or access to its features. ### What devices does NORD IAMRARE support? NORD IAMRARE is available on iOS devices, including iPhone and iPad. It is designed to be accessible across these platforms for user convenience. ### How often is NORD IAMRARE updated? The latest version of NORD IAMRARE is 1.0.60, which was last updated on December 13, 2025. Updates typically focus on improving features, security, and expanding language support. ### What languages does NORD IAMRARE support? NORD IAMRARE currently supports English, Spanish, and French. The platform plans to introduce additional languages in the future to reach a wider user base. ### How is my data protected on NORD IAMRARE? The IAMRARE platform is built with security as a top priority and adheres to strict guidelines to ensure your data is protected. It is designed to safeguard personal and health information contributed by users. ### Can I contribute data at my own pace with NORD IAMRARE? Yes, NORD IAMRARE allows you to work at your own speed by saving your progress. You can return to complete surveys or upload information later, ensuring a flexible user experience. ### What is the age rating for NORD IAMRARE? NORD IAMRARE has an age rating of 17+. This rating is based on the nature of the medical information and research participation involved. ## Version history (last 5 releases) ### 1.0.60 — 2025-12-13 Bug fixes and performance improvements ### 1.0.59 — 2025-12-08 Bug fixes and performance improvements ### 1.0.56 — 2025-10-30 Bug fixes and performance enhancements ### 1.0.49 — 2025-10-18 Bug fixes and performance improvements ### 1.0.36 — 2025-09-15 Bug fixes and performance improvements ## Apps similar to NORD® IAMRARE® | App | Rating | Price | Category | | --- | --- | --- | --- | | [Medosphere](https://appshunter.io/ios/app/medosphere/id6463172470) | 5.0 (5) | Free | Medical | | [myPALapp](https://appshunter.io/ios/app/mypalapp/id6499281093) | 5.0 (3) | Free | Medical | ## More apps by THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC - [Genetics Opinion](https://appshunter.io/ios/app/genetics-opinion/id1516382666) All apps by THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC: https://appshunter.io/developer/1500484222 --- *Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-06-07.*