# RareGuru: Rare Diseases — Caregiver & Patient Community > Community and resource app for rare disease patients and caregivers. (iPhone/iPad app by RareGuru, LLC.) - Source: https://appshunter.io/ios/app/rareguru-rare-diseases/id1497253264 (this page in markdown: same URL + `.md`) - Developer: [RareGuru, LLC](https://appshunter.io/developer/1497253263) - Category: Medical, Social Networking - Price: Free - Rating: 4.83/5 from 47 App Store ratings · 19 written reviews indexed - Age rating: 12+ - Requires: iOS 14.0 · 36 MB - Languages: English - Released: 2020-04-24 - Data updated: 2026-06-10 - Monetization: free with in-app purchases - User reviews in markdown: https://appshunter.io/ios/app/rareguru-rare-diseases/id1497253264/reviews.md ## What is RareGuru? If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru. RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive. Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process. Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers. Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision. Don’t let your disease isolate you from the world. Connect and learn together with RareGuru. RareGuru Features: Connect, Share & Network - Create a private or public profile sharing what information you’re comfortable with. - RareGuru matches you with other users who share a similar diagnosis or symptoms. - Filter your matches based on location, age, gender, and user type. - Message through private or group chats. - Safe and secure social networking. Symptom Tracker - Track symptoms and take notes to evaluate your condition. - Export data trends for sharing with doctors and specialists Rare Disease and Chronic Illness Database - RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms. - The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD). - Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity. .Global Disease map - Search the global disease map to see where certain diseases are more or less rare. - Find out how many RareGuru users share your diagnosis in any location. Rare Charities - RareGuru spotlights organizations serving the rare disease community. - Users can select their favorite rare charities during onboarding. RareGuru helps connect and support those experiencing rare diseases. Download today and join us. ## Key features - Connect with patients and caregivers - Symptom tracking and notes - Rare disease and chronic illness database - Global disease map - Private and group chat - User matching by diagnosis/symptoms ## Recent user reviews (10 of 19) All indexed reviews: https://appshunter.io/ios/app/rareguru-rare-diseases/id1497253264/reviews.md ### 5/5 — I'm almost in tears, this has been such a touching experience. *2020-12-08* I've spent years with minor gripe that seemed just a bit abnormal for my age but I also wasn't the nicest to my body when younger so I dismissed them. I came to find Rare Guru through an article I read, and really thought nothing of it at first besides it being a neat idea and my own experience in tech and frustration about my medical issues. I've had a suspicion that I had something weird aka rare that was not being diagnosed. Well thanks to the article which feature this app and its founders, I asked for a lab test that probably nobody would ever have ordered because I don't fit the clinical profile. I mean, almost not at all. Turn out it's abnormal and highly suggestive of hypophosphatasia. There are 10s of thousands of people using this app, and the founders took time to talk to me through the app and even a video conference and provide me with lots of info since it is something they are familiar with. My mind is truly blown. I finally have some answers for decades long questions that I probably would not have ever found was it not for that article and the story of Heather, her daughter and the app they created. I know this review isn't really about the features of the app, but since I work in the internet tech space, let me just say that it's not the features and functionality or lack of bugs that make a great app. It's whether it is effective for its intended purpose. I am one fretful individual who has proved that truly is the core of this app. It has been proved effective and I get to join an exclusive club of about 500 out of 330,000,000 people with this diagnosis. Let that % sink in. I'm off to buy a lottery ticket now. Thank you, Heather, Bennett and family! ### 5/5 — Amazing App *2020-09-30* This app has solved so many problems for me. From connecting me to symptoms to helping me find a community, RareGuru has been a lifesaver. **Developer response:** galaxy sloth, we love you more! Thank you for your review, feedback and for being one of our very first rare gurus. Please explore the RareGuru app, make new connections and give us a shout out if you think of ways to make our app better for those living with a rare disease or chronic illness. Stay well and welcome to the RareGuru community! ### 5/5 — Dream come true *2020-07-29* As someone with a rare disease that affected about 1 in 100,000 to 1 million people I’ve been looking for a platform to connect with others with the same thing and a place to track when my symptoms aren’t regular! If I could rate this 10 stars I would. Everyone needs to know about this app! **Developer response:** Smumps You are one in a million and we are so happy you found RareGuru! We are so thankful for your feedback and for you being here to help us form our community of support. Thank you! ### 5/5 — RareGuru Is A Must *2020-05-21, version 1.0* Wow I love RareGuru. You select your diagnosis and or symptoms if you wanna list your symptoms, then you get a selection of connections based on the information in your profile. You can make the list of your symptoms public or private and there’s even a symptom tracker. There’s no newsfeed or posting. Once you send a connect request and it’s accepted you get to talk one on one. So it’s like a community of people who share your diagnosis or symptoms with one on one emotional support through those good and bad days. I’d highly download RareGuru cuz here on RareGuru you aren’t alone. If someone doesn’t share your diagnosis or symptoms that you know of, then download RareGuru and I promise there’s people out in the world. You just haven’t met them yet but on RareGuru you will. **Developer response:** Huge dice fan, we are a huge fan of you! You have found your village and we're thankful that you will be here to welcome future RareGuru users with similar diagnoses and symptoms. Thank you for your feedback and for taking the time to write a review. Please reach out to us with any ideas to enhance the app for future builds. Stay well! ### 5/5 — happy 2 find teens like me *2020-05-15* This app is rlly cool and I was so relieved 2 find other teens like me! IDK that there was an app like RG!!!! It’s so cool and is very sleek and easy 2 use. It has helped me to DM other people going through the same stuff as me. I don’t feel so alone ⭐️ ⭐️ ⭐️ ⭐️ ⭐️ **Developer response:** War man 2 we hear you and teens are an important part of our community. You are not alone and we hope you make lifelong connections with other teens who are on similar journeys. Thank you for your review and let us know if you have any ideas or suggestions for the app. Stay well! ### 5/5 — Genius! *2020-05-06* As a healthcare professional I can’t say how much this app was NEEDED!!! So helpful on so many levels even if you don’t have a rare diagnosis. Thank you for bringing this into existence! **Developer response:** Thank you for your kind words PediatricDentalView! It is very helpful to have your perspective as a healthcare professional. We are thrilled to welcome you to the RareGuru community and hope you will reach out to us with any suggestions on how to improve the app for our patients and caregivers. Stay well! ### 5/5 — An amazing resource *2020-05-03* Finally an app that is extremely easy to use and allows you to choose between caregiver or patient. Love the community aspect of Rare Guru! **Developer response:** Thank you for your feedback Rubyltd! We're glad you find it easy to use our app and select your patient/caregiver/both user designation. Welcome to the RareGuru community and stay well. ### 5/5 — Positive community and resources *2020-04-30* This is such an inspirational app. I love the idea of bringing together isolated individuals and groups in the rare disease community to share and learn in a positive environment. This is what the internet was made for! After reading the founder’s story and some of the other shared stories on the blog, I’m really excited to see how this app grows. This has potential to be life changing for those of us who care for others or who suffer from a rare disease ourselves. **Developer response:** Binary Hipster, thank you for your feedback! We too are inspired by the users who have shared their stories on our blog. They show that although the diseases themselves are unique, families living with them share a very similar determination to find out as much as they can about their diagnosis and use that information for their care. We love that you found RareGuru and know you will be a valuable member of our community. Stay well. ### 5/5 — Incredible Resource *2020-04-27* Everything you need to know and connect is right here! It’s bringing me closer to this who are just like me while giving me so much information. **Developer response:** nguyenv17, thank you for your feedback, that is great to hear! Welcome to RareGuru and stay well. ### 5/5 — Awesome! *2020-04-25* Very easy to use and very exciting to be able to talk to people with experiences similar to ours. This is a great tool for our family. We are so happy that we found RareGuru. **Developer response:** Leftysully we feel exactly the same way and are so happy to welcome you to RareGuru! Thank you for your feedback and for being a valued member of our community. Stay well. ## Frequently asked questions about RareGuru ### What does RareGuru do? RareGuru is a free mobile application designed to connect patients and caregivers who are dealing with rare diseases or chronic illnesses. It provides a platform for users to share their experiences, learn about their conditions, and find support from others facing similar challenges. ### What are the key features of RareGuru? Key features include connecting with other users based on similar diagnoses or symptoms, a symptom tracker for monitoring and exporting data, a comprehensive database of rare diseases and chronic conditions, and a global disease map. Users can also engage in private or group chats for secure communication. ### Is RareGuru free to use? Yes, RareGuru is a free mobile app. While the description mentions in-app purchases, it also states the app is free to download and use for connecting with the community and accessing its features. ### Who is RareGuru for? This app is intended for individuals who are suffering from a rare disease or chronic illness, as well as their caregivers. It aims to combat isolation by fostering a supportive community where users can share stories, gain knowledge, and find resources. ### Can I track my symptoms with RareGuru? Yes, RareGuru includes a symptom tracker feature. Users can log their symptoms and take notes to evaluate their condition over time. This data can also be exported for sharing with doctors and specialists, aiding in better health management. ## Version history (last 5 releases) ### 2.0.0 — 2024-04-01 What's New in Version 2.0 - A Fresh Perspective We're thrilled to unveil the next chapter in our journey - Version 2.0 of RareGuru. This isn't just an update; it's a complete transformation, envisioned from the ground up to enhance your experience, streamline your navigation, and broaden your horizons. Here's what's new: Sleek, New Design: Dive into a world where elegance meets functionality. Our app has been completely rewritten to introduce a fresh look and feel, ensuring a more intuitive and engaging user experience. Enhanced Navigation: The introduction of a universal app drawer makes accessing your profile, preferences, and settings easier than ever. It's all at your fingertips, providing a seamless journey through the app. Revolutionized Disorder and Symptoms Management: We've reimagined how you manage disorders and symptoms. Our goal? To provide you with the tools you need for better management, understanding, and control. Symptom Tracker, Reimagined: Say hello to a new level of tracking with our improved symptom tracker. Now, you can log multiple symptoms within a day, edit past entries, and view your symptoms over any given period. It's empowerment at its best. Explore Like Never Before: Discover and connect in new ways with our Explorer feature. Search profiles or filter by disorder to find exactly what you want. It's your journey, personalized. Map Interface, Redefined: Navigate confidently with our new map interface, featuring improved markers that help you explore new insights about the rare disease community. Chat, Enhanced: Communication is key, and our new chat interface makes it more dynamic. Add images, share links, and engage in conversations that matter. Groups, Reimagined: Whether you're looking to join a public group or create a private sanctuary, our new group interface provides the platform to connect and share with others who understand. Smarter Matching Algorithms: Our improved matching algorithms now deeply consider your preferences, ensuring more accurate and meaningful connections. This version represents a leap forward, a testament to our commitment to innovation and continuous improvement. Your feedback has been instrumental in shaping this update, and we're excited for you to experience the enhancements firsthand. Update to Version 2.0 today, and transform how you engage with RareGuru. Here's to new beginnings! ### 1.2.6 — 2021-11-19 This version corrects several bugs related to navigation and password resets. ### 1.2.5 — 2021-08-31 This version provides updates to our navigation library, along with a more reliable service for managing notifications. ### 1.2.4 — 2021-04-21 This version fixes location search not showing valid addresses and updates some internal libraries to their latest version. ### 1.2.1 — 2021-04-17 Fixing missing push tokens Fixing line on top of profile picture Fixing dates on chat to show more relevant info --- *Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-06-10.*