# RettApp — Rett Syndrom App > Rett Syndrom App (iPhone/iPad app by AFSR.) - Source: https://appshunter.io/ios/app/rettapp/id1130982342 (this page in markdown: same URL + `.md`) - Developer: [AFSR](https://appshunter.io/developer/1130982341) - Category: Medical, Health & Fitness - Price: Free - Age rating: 4+ - Requires: iOS 17.0 · 6 MB - Languages: French (France) - Released: 2018-03-12 - Data updated: 2026-07-27 - User reviews in markdown: https://appshunter.io/ios/app/rettapp/id1130982342/reviews.md ## What is RettApp? RettApp is the official app of the Association Française du Syndrome de Rett (AFSR). It is designed to help parents and caregivers track the daily health of a child living with Rett syndrome, organize their medication plan and prepare medical appointments. ——— FOR WHOM ——— • Parents, grandparents, siblings of a child with Rett syndrome • Professional caregivers and home helpers • School and care-center teams (with the printable follow-up booklet) ——— WHAT YOU CAN DO ——— DAILY JOURNAL • Quick seizure entry: type, duration, trigger, notes • Recurring medication plan + on-demand intakes • Mood, meals (per time of day), hydration, night sleep and naps • Rett-specific symptoms (hand stereotypies, apnea, bruxism, dystonia…) with intensity and duration DASHBOARD AND ANALYSIS • Charts on 7 days, 30 days, 3 months or 1 year • Trend vs. previous period on every key metric • Pick which symptoms appear as charts (frequency or intensity) • Synchronized crosshair across all charts to compare metrics on the same day DOCTOR REPORT • Generates a complete PDF: statistics, exploratory correlations (mood, sleep, adherence), medication plan analysis, full seizure calendar • French-language summary ready to paste into the medical record FOLLOW-UP BOOKLET FOR SCHOOL / CARE CENTER • Generates a printable A4 page, 100% checkboxes (intensity, quantity, frequency are pre-defined) • Choose dose-by-dose which medication intakes to track, which meals, which Rett symptoms • Scan the filled-in booklet to pre-fill the evening journal automatically PARENT SHARING • Secure iCloud sync between family iPhones • In-person AirDrop invitation only (no sharing by email or Messages) • Remove individual participants at any time CHILD'S APPLE HEALTH DATA • On the child's iPhone: choose which types to forward (night sleep, naps, hydration, meals, heart rate, activity) • Read-only — RettApp never writes to Apple Health ——— SUPPORT THE AFSR ——— Donate to AFSR. Donations are 66% deductible from French income tax. ——— PRIVACY ——— Your data stays on your iPhone. Parent sharing goes through your personal iCloud — no AFSR server receives any of it. No tracker, no advertising, no third-party analytics. Full policy: https://rettapp.afsr.fr/confidentialite.html ——— MEDICAL DISCLAIMER ——— RettApp is a tracking tool for parents and caregivers. It is not a medical device under EU regulation 2017/745 (MDR). The statistics it produces are exploratory and do not replace medical advice. In an emergency, call 112 or your local emergency services. ——— ABOUT THE AFSR ——— The Association Française du Syndrome de Rett is a non-profit organization (loi 1901, recognized public-interest status) that has supported families, funded research and given a voice to people living with Rett syndrome in France for over thirty years. More: https://afsr.fr ## Version history (last 5 releases) ### 1.8.1 — 2026-07-27 Major fix for parent-to-parent synchronization. A bug prevented the app from locating the family share once the data volume exceeded a few hundred records: the share appeared lost on both devices and re-inviting failed. This flaw has been fixed at the root, and the app now automatically recovers existing shares. Additionally: changes made offline are now pushed automatically as soon as connectivity returns, and a new "Sync Diagnostic" page (Settings → Sharing → Troubleshooting) shows the exact connection state to speed up support. Updating both phones is strongly recommended. ### 1.8 — 2026-07-12 Parent‑to‑parent sync has been rebuilt from the ground up: changes made offline are pushed as soon as connectivity returns, deletions now propagate reliably, and a status banner at the top of the screen alerts you the moment a sync fails — with a one‑tap "Retry" button. Seizures logged on one device now surface on the other parent's device in under two seconds. The Dashboard reads more cleanly (adaptive Y‑axis scales for long durations, no more overlapping labels) and Settings has been reorganized around what you use most. A subtle banner also lets you know when a new version is available on the App Store. ### 1.7.1 — 2026-07-09 Fixes an important sync bug: when one parent marked a scheduled medication dose as given, it appeared as a duplicate entry on the other parent's device instead of updating the existing scheduled row. Both devices now converge on the same identifier for each scheduled dose, and a safe one-time cleanup automatically merges any duplicates carried over from earlier versions. Real-time medication tracking between parents is finally reliable. ### 1.7 — 2026-07-06 Fixes an important sync bug: when one parent marked a scheduled medication dose as given, it appeared as a duplicate entry on the other parent's device instead of updating the existing scheduled row. Both devices now converge on the same identifier for each scheduled dose, and a safe one-time cleanup automatically merges any duplicates carried over from earlier versions. Real-time medication tracking between parents is finally reliable. ### 1.6 — 2026-05-18 Versioned medication plan: every modification creates a timestamped revision. You can now display the plan as it was on any past date (useful for retrospective consultations) and access the change history from each medication's editor. Enriched doctor's medical report: • New "Plan evolutions" section with a readable diff (previous dose → new dose, modified times, active days, etc.) • New "Estimated impact of plan changes" section comparing seizures, mood and sleep 14 days before and after each modification • Correlations recomputed per treatment regime, useful for distinguishing a medication effect from another factor • Automatic synthesis highlighting the most significant change French medication database: autocomplete on the ~15,000 specialties of the BDPM register (medicaments.gouv.fr), with commercial name and active ingredient (INN). Medication plan now accessible from the child's profile in Settings. Important fixes: • Intake editing (time, dose, days, reminders) is fully functional again • No more duplicate entries in the journal after a plan modification • Explicit "Delete" button in the medication editor • Improved diagnosis of CloudKit errors in production • Strictly in-person sharing via AirDrop (Messages, Mail and other remote channels excluded) --- *Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-07-27.*