# Sickle Cell Disease — Sickle Cell Disease

> Sickle Cell Disease management tool for families of affected children. (iPhone/iPad app by PHOENIX CHILDREN'S HOSPITAL, INC.)

- Source: https://appshunter.io/ios/app/sickle-cell-disease/id1486137466 (this page in markdown: same URL + `.md`)
- Developer: [PHOENIX CHILDREN'S HOSPITAL, INC](https://appshunter.io/developer/1473967984)
- Category: Medical
- Price: Free
- Rating: 5.00/5 from 3 App Store ratings
- Age rating: 17+
- Requires: iOS 12.2 · 8 MB
- Languages: English
- Released: 2019-12-06
- Data updated: 2026-06-01
- Monetization: free
- User reviews in markdown: https://appshunter.io/ios/app/sickle-cell-disease/id1486137466/reviews.md

## What is Sickle Cell Disease?

The Emily Center at Phoenix Children’s Hospital presents Our Journey with Sickle Cell Disease as a tool to help the family of a child diagnosed with Sickle Cell Disease identify what they need to know to safely care for their child at home.  

When a child is cared for in the hospital or clinic setting, parents can be overwhelmed by nurses and doctors speaking medical jargon.  Sometimes health care providers think they are clearly communicating, but do not check to make sure you understand their instructions. If you are able to teach back the information in your own words, you can be confident you do understand.

The Our Journey with Sickle Cell app is designed to:
— facilitate conversations between families and the health care team.
— help parents identify what they need to know to safely care for their child at home.
— give parents a safe way to admit what they do not know or understand and ask questions.
— cue families on what they need to teach back or demonstrate to their nurse or doctor. 
     This gives the health care provider an opportunity to confirm information and skills and    
     correct misunderstandings.
— help families feel confident that they can safely care for their child at home, know the signs of 
     possible problems, and know how to respond.

About The Emily Center at Phoenix Children’s Hospital:
Founded in 1990, the Center is named after Emily Anderson.  Emily fought a rare form of leukemia for four years before losing her battle a few days before her seventh birthday.

Frustrated by the lack of easy to understand information about Emily’s illness, her parents founded The Emily Center so that families of sick children would always have access to pediatric health information that is accurate, easy to understand, and free of charge to Arizona’s families. http://www.theemilycenter.org and on Twitter @emilycenter.

The Our Journey with Sickle Cell Disease mobile app has been funded by a grant from Cox.

## Key features

- Home care guidance for Sickle Cell Disease
- Facilitates family-healthcare team conversations
- Helps identify knowledge gaps
- Supports teach-back method for understanding
- Builds confidence in home care
- Identifies signs of potential problems


## Frequently asked questions about Sickle Cell Disease

### What is Sickle Cell Disease about?

Sickle Cell Disease is a tool designed to help families of children diagnosed with Sickle Cell Disease understand and manage their child's care at home. It aims to bridge communication gaps with healthcare providers and empower families with knowledge.

### Who developed Sickle Cell Disease?

Sickle Cell Disease was developed by The Emily Center at Phoenix Children’s Hospital, an organization dedicated to providing accurate and easy-to-understand pediatric health information.

### Is Sickle Cell Disease free to use?

Yes, Sickle Cell Disease is completely free to use. It was funded by a grant from Cox and is provided by The Emily Center at Phoenix Children’s Hospital.

### What devices support Sickle Cell Disease?

Sickle Cell Disease is available on iPhone, iPad, and iPod devices, making it accessible for families on various Apple platforms.

### How often is Sickle Cell Disease updated?

The latest version of Sickle Cell Disease is 1.1, which was last updated on February 19, 2020. This indicates a commitment to maintaining and improving the app's content.

### What is the age rating for Sickle Cell Disease?

Sickle Cell Disease has an age rating of 17+. This is likely due to the complex medical information and the target audience of adult caregivers.

### Does Sickle Cell Disease have ads?

No, Sickle Cell Disease does not contain advertisements. The app is ad-free, ensuring an uninterrupted and focused experience for users.

### How does Sickle Cell Disease help with understanding medical jargon?

The app is designed to facilitate conversations between families and healthcare teams. It encourages a 'teach-back' method where parents can explain information in their own words, allowing healthcare providers to confirm understanding and correct any misunderstandings.

## Version history (last 2 releases)

### 1.1 — 2020-02-19

Fixed local data saving issue

### 1.0 — 2019-12-06

No release notes.

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## More apps by PHOENIX CHILDREN'S HOSPITAL, INC

- [Our Journey™ in the Hospital](https://appshunter.io/ios/app/our-journey-in-the-hospital/id648084857)
- [Our Journey with Asthma](https://appshunter.io/ios/app/our-journey-with-asthma/id969458324)
- [Nuestro Camino y el asma](https://appshunter.io/ios/app/nuestro-camino-y-el-asma/id971727268)
- [Our Journey with Tube Feeding](https://appshunter.io/ios/app/our-journey-with-tube-feeding/id975515987)
- [Alimentación por sonda](https://appshunter.io/ios/app/alimentacion-por-sonda/id975517219)
- [Our Journey with Surgery](https://appshunter.io/ios/app/our-journey-with-surgery/id978297724)

All apps by PHOENIX CHILDREN'S HOSPITAL, INC: https://appshunter.io/developer/1473967984

## Related topics

[SYICLE](https://appshunter.io/ios/topics/syicle) · [sickle cell](https://appshunter.io/ios/topics/sickle-cell) · [sickle cell disease](https://appshunter.io/ios/topics/sickle-cell-disease)

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*Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-06-01.*