# TheRareLens — Research Equity, Visualized

> Research Equity, Visualized (iPhone/iPad app by Aditi Kishore.)

- Source: https://appshunter.io/ios/app/therarelens/id6784095604 (this page in markdown: same URL + `.md`)
- Developer: [Aditi Kishore](https://appshunter.io/developer/1896675785)
- Category: Education, Productivity
- Price: Free
- Age rating: 4+
- Requires: iOS 15.1 · 42 MB
- Languages: American English
- Released: 2026-07-03
- Data updated: 2026-07-18
- User reviews in markdown: https://appshunter.io/ios/app/therarelens/id6784095604/reviews.md

## What is TheRareLens?

RareLens: Research Equity for Rare Diseases

The Problem
Over 7,000 rare and autoimmune diseases exist but fewer than 5% have an approved treatment. Research funding from the NIH often doesn't reflect how many people a disease affects or how severely it impacts their lives. Patients wait years for a diagnosis. Researchers don't know where the biggest gaps are. Advocates don't have the data to make their case. RareLens changes that.

Who It's For
— Patients and caregivers who want to understand where their disease stands in the research landscape
— Scientists and clinicians looking for high-impact, underserved areas to direct their work
— Patient advocates building the case for more funding
— Students and researchers exploring rare disease epidemiology and health equity

How It Works
RareLens pulls live data from NIH Reporter, PubMed, and ClinicalTrials.gov to score every disease across two dimensions:

• Research Score: how much NIH funding and published science exists for a disease
• Patient Burden Score: how prevalent the disease is and how severely it affects quality of life

The difference between the two is the Gap Score a single number that tells you exactly how underfunded a disease is relative to the burden it places on patients.

Features
— Live gap scores and funding trends for rare and autoimmune diseases
— Disease profiles with NIH funding history, active clinical trials, and recent publications
— Year-over-year funding change tracker to catch emerging shifts in research investment
— Bookmark and track the diseases that matter to you
— Search any disease, even one not in our catalog and get a full score within seconds


The Science Behind It
Every score is formula-based, sourced from public government data, and fully reproducible. RareLens was built on a peer-reviewed methodology grounded in NIH Reporter, Orphanet prevalence data, and the Global Burden of Disease Study 2021.

This is not a curated list. This is a live, data-driven map of where science is and isn't showing up for patients.


## Version history (last 1 release)

### 1.0 — 2026-07-03

No release notes.

## More apps by Aditi Kishore

- [Research Unlocked](https://appshunter.io/ios/app/research-unlocked/id6769643456)

All apps by Aditi Kishore: https://appshunter.io/developer/1896675785

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*Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-07-18.*