# We The BE — Bladder exstrophy, explained > Medical information and community support for Bladder Exstrophy, Cloacal Exstrophy, and Epispadias. (iPhone/iPad app by OKC Kids Urology, PLLC.) - Source: https://appshunter.io/ios/app/we-the-be/id1559733718 (this page in markdown: same URL + `.md`) - Developer: [OKC Kids Urology, PLLC](https://appshunter.io/developer/1559733720) - Category: Medical, Health & Fitness - Price: Free - Rating: 5.00/5 from 9 App Store ratings · 5 written reviews indexed - Age rating: 4+ - Requires: iOS 15.1 · 56 MB - Languages: American English - Released: 2022-02-22 - Data updated: 2026-10-01 - Monetization: free - User reviews in markdown: https://appshunter.io/ios/app/we-the-be/id1559733718/reviews.md ## What is We The BE? We the BE is a free educational companion for families, patients, and caregivers living with bladder exstrophy - built with the clinicians who treat it. Bladder exstrophy, cloacal exstrophy, and epispadias are rare. Reliable information is scattered, inconsistent, and hard to trust. We the BE, bring it into one place, in plain language, reviewed by specialists. ASK THE CLINIC Ask a question and get an educational answer grounded in the clinic's own video library. Every answer cites its sources and links directly to the exact moment in the video, so you can always see where the information came from. Conversations are not saved to your device. YOUR CONDITION, EXPLAINED Clear overviews of bladder exstrophy, cloacal exstrophy, and epispadias, what they are, how they are managed, and what to expect at each stage. TREATMENT AND PREPARATION GUIDES Step-by-step guidance on procedures and how to prepare for them, so appointments and hospital stays hold fewer surprises. EXPERT VIDEO LIBRARY Watch leading clinicians explain diagnoses, surgical approaches, and day-to-day care, organized by topic and by specialist. MEDICAL PRODUCT GUIDES Practical information on catheters, stents, and the other supplies families actually use. ASK A SPECIALIST Submit your questions and receive answers reviewed by medical professionals. Answers are shared anonymously, so every question helps the whole community. COMMUNITY FORUM Connect with other families who understand. Share experiences, ask questions, and find people further along the same path. RESOURCES AND REFERENCES Trusted documents, FAQs, and source references organized by topic and life stage. We the BE is for education only. It does not provide medical advice, diagnosis, or treatment, and it is not a substitute for care from your own medical team. Always talk to your clinician about your situation. If you have a medical emergency, call your local emergency number. 'We the Be' is sponsored by The Black Foundation and was developed by the team at OKC Kids Urology www.okckidsurology.com in partnership with Association for Bladder Exstrophy Community (A-BE-C) www.bladderexstrophy.com. ## Key features - Expert information on exstrophy conditions - Educational videos on human development and trauma - Private community forum for support and discussion - Guidance for parents and individuals with exstrophy - Resources from leading medical professionals ## Recent user reviews (5 of 5) All indexed reviews: https://appshunter.io/ios/app/we-the-be/id1559733718/reviews.md ### 5/5 — A Retired Pediatric Urologist *2022-03-02* A wonderful simple yet comprehensive review of the complex subject of bladder and cloacal exstrophy. A great resource for parents that have a child with this disorder, and for these children. In addition the pediatrician, urologist, and pediatric surgeon, who are consulted for this relatively rare disorder are able to discuss this more fully with the family. Illustrations are simple, yet exact. This review can be highly recommended for parents and care givers who are faced with a child with exstrophy. ### 5/5 — Great Resource! *2022-03-02* This is amazing! What a gift to have all the necessary information and resources easily accessible right on my phone. Thank you! ### 5/5 — Wonderful *2022-03-01* Great resource! ### 5/5 — New Bladder app *2022-03-01* This app is great - one of a kind resource and the navigation is easy. Love all the info provided. ### 5/5 — Very useful free app! *2022-02-24* I found this app very useful for children and parents! There are easy-to-understand informative videos and explanations! And there is a communication section. Great app!! ## Frequently asked questions about We The BE ### What medical conditions does Bladder Exstrophy cover? Bladder Exstrophy provides information on Bladder Exstrophy, Cloacal Exstrophy, and Epispadias. It aims to offer comprehensive details for individuals and families affected by these conditions. ### Who developed the Bladder Exstrophy app? The Bladder Exstrophy app was developed by the team at OKC Kids Urology in partnership with the Association for Bladder Exstrophy Community (A-BE-C). ### Is Bladder Exstrophy available on Android devices? Currently, Bladder Exstrophy is supported on iPhone and iPod devices. Information on Android availability is not provided. ### How often is Bladder Exstrophy updated? The app was last updated on January 16, 2024, indicating ongoing maintenance and potential for future content additions. The latest version is 2.0.0. ### What is the user rating for Bladder Exstrophy? Bladder Exstrophy has a perfect rating of 5.0 stars based on 9 user reviews, suggesting a highly positive user experience. ### Does Bladder Exstrophy have ads? No, Bladder Exstrophy does not contain advertisements. The app is free to download and use without any ad interruptions. ### Can I connect with other users through Bladder Exstrophy? Yes, Bladder Exstrophy features a private forum where users can ask questions, discuss experiences, and find support and advice from others in the exstrophy community. ### What age rating does Bladder Exstrophy have? Bladder Exstrophy is rated 4+ by the app stores, making it suitable for users of all ages seeking information and support. ## Version history (last 5 releases) ### 3.0.0 — 2026-09-26 ASK THE CLINIC Ask educational questions and get answers grounded in the clinic's own video library. Every answer includes cited sources that link straight to the relevant moment in the video, so you can always check the original. Chats are not saved to your device. RESOURCES LIBRARY Trusted documents, videos, and guidance, now organized by topic and life stage — and openable without leaving the app. A REFRESHED EXPERIENCE New onboarding, updated branding, and reworked navigation make it faster to find what you need. MORE RELIABLE Improved chat and video usability, better error handling, accessibility improvements, and stability fixes throughout. ### 2.0.0 — 2024-01-16 BE App version 2.0 is ready! Faster and more reliable BE app experience is waiting for you! ### 1.1.6 — 2023-04-18 We added a new video player. ### 1.1.5 — 2023-02-14 New contact page! ### 1.1.4 — 2022-12-15 New features and bug fixes! ## Apps similar to We The BE | App | Rating | Price | Category | | --- | --- | --- | --- | | [Urology Research and Practice](https://appshunter.io/ios/app/urology-research-and-practice/id551333466) | — | Free | Medical | | [Tiny Tinkle](https://appshunter.io/ios/app/tiny-tinkle/id6470447819) | — | Free | Medical | --- *Data collected daily from the US App Store and indexed by [AppsHunter](https://appshunter.io/). User reviews are verbatim App Store reviews. Ratings, prices and chart positions refresh continuously; this snapshot is from 2026-10-01.*