Blood Cancer United Health App User Reviews

Top reviews

Love the App but date bug is a BIG issue

I absolutely love the App for tracking medication, side effects, questions for hematologist, etc. It’s proven VERY useful to me through my lymphoma journey! However, the date bug from the last few days with the year stuck in 2024 is a BIG issue as I am used to entering medication time as accurately as possible. Really hoping for a fix as I can’t seem to be able to reach the developpers. Please keep up the good work already invested in this amazing App!
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Great but the date functionality is bugged

Any dates are forced-set to year 2000. Unable to change year. Confusing and difficult to track dates for side effects and medications. Removing 2 stars.

Doesnt work

Won’t let me sign in no matter how many times I reset the password. This app seems good in theory but cant really judge it since it wont let me or the patient log in at all.

Locked up and now I can’t log in.

Locked up and now I can’t log in. I deleted it and reinstalled twice and restarted phone still doesn’t work.

User interface needs work

Great options and ideas for the app, but not impressed with interface for patients who are or have been through treatments. Needs to be revamped with the feedback of patients and caregivers. For folks experiencing brain fog from chemo and radiation or all over fatigue the app is complicated and not user friendly. Found no instructions on how to link caregiver to patient for monitoring. Also, many medications are taken on regular schedule, having the ability to select days, hours, or frequency would make easy to use for patients, especially with PRN or as needed medication. If med is taken at 8a and you can take again in 4 hours, but you take at 10a, app reminds you to take again at Noon. Very dangerous and person could cause harm taking too soon or too often.
Again, options are great but needs more thought from the view of patient/caregiver. As is, it is not helpful to patient or caregiver and could be dangerous.
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No Privacy Using this App.

I am very appreciative of LLS for all that they do for patient advocacy, research, and support for leukemia and lymphoma patients but where is the ability to keep my medication intake and my overall health private? Don’t see the option for me keep all my pertinent info private. Where are the privacy settings?

RESPONSE TO DEVELOPER:

Where is the privacy from LLS? Where are the privacy statements that tell me what you’re going to do with my info and how I can opt out of you doing anything with my data? every time I go to the doctor I am informed of the HIPPA Notice of Privacy Practices. Where is the right to opt out of LLS using my info for their own purposes?
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Response from developer

Hi, The LLS Health Manager app is a password-protected and token-based app, therefore nobody can regenerate the token and access the data. Also no data is stored locally to the device and everything is securely stored in the server. We hope this information helps!

Great concept but...

I heard this was a great app to help keep track of all the meds my daughter has to take. I entered all the meds and doses, as well as reminders and none of the reminders have been alerting.

Response from developer

Thank you for this feedback. We did discover a glitch that was causing some users' reminders to fail. It's been fixed if you would like to try again. Thanks again!

Useless

Would never let me sign in with correct sign in info. When tried the forgot password link, it would say not active. Tried to sign up again, said email already registered!!! WTH?

Response from developer

Thank you for this feedback. It’s very helpful, as we want to fix any bugs that may arise. Because we cannot access your contact information here, will you please email PatientAppSupport@lls.org so we can troubleshoot? We absolutely want to ensure that all users are able to log in. Thank you!

Adding medications / Calendar feature

I went through the app this morning and I think it’s really awesome that you are making a product for the needs that we have. I have found a few issues I believe.

When adding medications, the app thinks I have already taken them because it shows checkmarks next to them. I don’t know if they’re supposed to change color to green but seeing a check mark makes me think it’s already done. In this same view, it would be cool to swipe the medication to edit dosage and time or delete/pause/stop. It also is telling me not forget one I have at 9:00 pm but I have one also at 9:00 am and it’s only 7:27 am now... forgot to mention for when tracking medication. There is not an option for taking taking in future

A calendar feature would be nice to have to show appointments.
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Response from developer

Thank you so much for this feedback. It’s very helpful to us, as we want to fix any bugs that may arise. Regarding the check mark, when you take a medication and click the check mark, it should turn red. If you click the medication, you should be able to edit dosage/time or delete it all together. I'm not sure about the last issue you mentioned and will need to look into it. Since we cannot see your contact information, will you please email PatientAppSupport@lls.org so we can troubleshoot? Thank you!

Helpful

This has been so helpful to me. It keeps me organized so I can talk to my doctor about all of my concerns. The grocery lists are awesome!