Data older than 3 years is ignored; results strange
The app has a lot of useful information in it but the results are strange. I know it’s not a substitute for a visit with the doctor, but the conflicting results it gives didn’t help me figure out my next steps. More confused than ever!
First, your calcium/parathyroid hormone results > 3 years old are ignored when calculating your risk. After digging around, I discovered that’s on purpose. If you start out with your oldest labs first and they are > 3 years old, you’ll get error messages saying you didn’t enter anything when you did. That’s because the app ignores it.
Why use only 3 years of data? The doctors are emphatic that people walk around with this condition for years, and the more information you have, the better.
In addition, it doesn’t seem to factor in that you might be trending worse as time goes on, giving me a somewhat baffling interpretation.
For example, if I enter one lab at a time, look at the analysis with the needle, then delete it and enter the next one so I can see what each one independently says about my risk, I get the following results:
3 years ago = UNLIKELY POSSIBLE cusp, 2 years ago = halfway through POSSIBLE, and in the most recent year = LIKELY/VERY LIKELY cusp. Getting worse, right?
But when these 3 years are all entered so that they are analyzed as a unit, the needle indicates the high end of UNLIKELY, with the needle LOWER than it was for any of the 3 individual entries!
Wouldn’t the most recent year = LIKELY/VERY LIKELY have more weight since it was recent and there’s a worsening trend? Why does it come up with a result that is LOWER than what each individual result says?
My labs from 2018, entered by itself using a fake recent date to work around the 3-year issue, put the likelihood as high as it will go, followed by several years of not-so-certain. Not sure why this bloodwork is not relevant to the app.
So bottom line is, I don’t know if I’m VERY LIKELY to have it or UNLIKELY to have it. So I guess I’m going to wait another few years until everything seems really obvious, right? This is what I’ve been doing for 7 years and I was hoping this was going to help me out, but I can’t make much sense of it.
A couple of small things to make working with this easier.
It would be nice to have the analysis button available after each data point is entered instead of having to back all the way out to get to it. I liked seeing how each entry changed the needle and it was a slog to have to keep backing out and then going back to enter another data point.
When editing the date, it completely jumps back to today’s date instead of keeping the date you had, so if all you wanted to do was change the day of the month, for example, you have to re-enter the entire date. Kind of annoying.
First, your calcium/parathyroid hormone results > 3 years old are ignored when calculating your risk. After digging around, I discovered that’s on purpose. If you start out with your oldest labs first and they are > 3 years old, you’ll get error messages saying you didn’t enter anything when you did. That’s because the app ignores it.
Why use only 3 years of data? The doctors are emphatic that people walk around with this condition for years, and the more information you have, the better.
In addition, it doesn’t seem to factor in that you might be trending worse as time goes on, giving me a somewhat baffling interpretation.
For example, if I enter one lab at a time, look at the analysis with the needle, then delete it and enter the next one so I can see what each one independently says about my risk, I get the following results:
3 years ago = UNLIKELY POSSIBLE cusp, 2 years ago = halfway through POSSIBLE, and in the most recent year = LIKELY/VERY LIKELY cusp. Getting worse, right?
But when these 3 years are all entered so that they are analyzed as a unit, the needle indicates the high end of UNLIKELY, with the needle LOWER than it was for any of the 3 individual entries!
Wouldn’t the most recent year = LIKELY/VERY LIKELY have more weight since it was recent and there’s a worsening trend? Why does it come up with a result that is LOWER than what each individual result says?
My labs from 2018, entered by itself using a fake recent date to work around the 3-year issue, put the likelihood as high as it will go, followed by several years of not-so-certain. Not sure why this bloodwork is not relevant to the app.
So bottom line is, I don’t know if I’m VERY LIKELY to have it or UNLIKELY to have it. So I guess I’m going to wait another few years until everything seems really obvious, right? This is what I’ve been doing for 7 years and I was hoping this was going to help me out, but I can’t make much sense of it.
A couple of small things to make working with this easier.
It would be nice to have the analysis button available after each data point is entered instead of having to back all the way out to get to it. I liked seeing how each entry changed the needle and it was a slog to have to keep backing out and then going back to enter another data point.
When editing the date, it completely jumps back to today’s date instead of keeping the date you had, so if all you wanted to do was change the day of the month, for example, you have to re-enter the entire date. Kind of annoying.
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Feedback
Thank you for creating this tool. It has been very helpful in evaluating my condition. However, one inconvenience I encountered was that the tool does not store the data I input. As a result, I had to input my data repeatedly, which was quite time-consuming. It would be great if you could add a feature to save users’ inputs.
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Measurement Options Won’t Change
I tried to load the Calcium-Pro app to add my information and try to pinpoint if I have PHPT or not as my labs come back, and am not able to add my lab values in, due to not being able to change the unit of measure selection to the correct units of measure. It seems that it is one line off… the selector changes the unit of measure for the next line of data entered below it for some reason (in app on iPhone). Hope they can get this fixed so I can update the review, and add stars/update review after the app is working correctly.
Thank you
Thank you
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Crucial App Self Diagnose
Your calcium numbers are “kinda high”. Nothing alarming.
Maybe just under some range set by the lab but still high.
But go back a few years and compare. Are they always in the 10’s?
Time to get a parathyroid hormone test added to your bloodwork.
Show this app to your family doctor. Show it to
Your friends and family.
You don’t have to live in pain for years.
Maybe just under some range set by the lab but still high.
But go back a few years and compare. Are they always in the 10’s?
Time to get a parathyroid hormone test added to your bloodwork.
Show this app to your family doctor. Show it to
Your friends and family.
You don’t have to live in pain for years.
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Riddled with Bugs
Sadly, the bugs mentioned by some people 2 years ago, have not been fixed. I have also found out that under the “My Analysis” section, the calcium/PTH, Vitamin D, calcium/vitD and osteoporosis sub-sections are not working. The app states: “You have not entered any data to graph “ - or the app does not provide a dot to let you know where you stand. It is very frustrating! Why would a reputable hospital creates an app, but does not follow up on its functionality?! Many patients will rely on an app like this one to convince their primary care physician to investigate their symptoms regarding hyperparathyroidsm because of a general lack of understanding, and then you are also being let down by it. Please, do fix your app!
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