Cure HHT Journal

Cure HHT Journal — Your Nosebleed Journal, Designed with HHT Experience Living with Hereditary Hemorrhagic Telangiectasia (HHT) can mean dealing with recurrent nosebleeds and keeping track of how they affect your daily life. Cure HHT Journal was developed from experience working with the HHT community and clinical trials. We built the tool we wished existed: a dedicated journal designed to help people with HHT record their nosebleeds and make that information more useful for their healthcare teams. A journal designed around the needs of people with HHT HHT is a rare condition, and keeping a consistent record of nosebleeds can be challenging. Cure HHT Journal helps make that process easier by providing a dedicated place to document your nosebleed experiences. What you can do with Cure HHT Journal: • Track your nosebleeds: Record details about your nosebleed episodes in a dedicated journal. • Keep a record over time: Build a history of your nosebleed experiences to help you reflect on patterns and changes. • Share information with your healthcare team: When using the study-connected features, your journal data can be shared with your healthcare team to support conversations about your care. • Support clinical research: The journal was designed with experience from HHT clinical trials, with the goal of improving the quality and consistency of patient-reported data collected in research. Built from HHT experience Cure HHT Journal grew out of a simple idea: people living with HHT deserve tools designed around their real experiences. By bringing together patient journaling and experience in clinical research, we aim to make nosebleed tracking more accessible and help support better data collection for HHT studies. Whether you are keeping a personal record or participating in a clinical study, Cure HHT Journal is designed to help you document your nosebleed experiences in one dedicated place.