Good product, but ...
I recently began utilizing the EpiMonitor trading in my Embrace 2 Seizures Watch. While I appreciate the various features offered by these devices, I have faced some challenges when logging additional triggers during manual seizure recordings. At times, the experience can be somewhat disorienting, and there are instances where the device does not successfully detect a seizure event. Nonetheless, this product holds considerable value and has been a beneficial tool for my needs.
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Expensive Finicky App
EpiMonitor generated false seizure alerts and repeatedly contacted my caregivers even though I was not having a seizure. This created unnecessary stress and confusion for both me and my family. A seizure-monitoring system needs to be reliable, and my experience with false alarms has made me lose confidence in the product. For the cost of the subscription along with a device that needs medical prescription. They need do better to let false alarms stopped. A swing of my arm walking to the bathroom at night or just easy daily routine. the product lets down and alerts too much that is false.
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Absolutely sucks
Even if I have it on low of if I move my arms in the slightest it goes off and then all of the people who get alerts get freaked out and start messaging and calling. This is genuinely horrible. I feel bad my mom has to pay for this overly expensive thing that is absolute trash.
Change one thing
Please add an option to disable notifications/vibrations when the app and watch disconnect. Data/bluetooth isn’t always reliable and I frequently receive vibrations when the devices disconnect and reconnect for a short second. because of this. I end up getting a vibration every 10 to 30 minutes which makes me less aware of important alert since the frequent disconnect vibrations become distracting and easy to ignore
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Amazing savior
Parents can close their eyes at night in peace for the first time in years!
Disappointed
The watch was over £200, the software to enable the watch equally expensive, phone contract as it needs to connect to cellular and it doesn’t work. It’s sat in the box since. The app worked for about a week and then stopped, we’ve lost any data we’d collated. Too late to return. Extremely disappointed.
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Vibration
Any idea why the monitor vibrates when it’s correctly on the patients wrist and no seizure is going on?
Poor app and pricing
Payed a lot of money for watch and then also lot of money per month to use it it’s sad that they charge so much for a medical piece of kit and then charge a lot monthly too works out about £40 a month. The app isn’t working can’t add emergency contacts and watch buzzes randomly when sleeping disturbing sleep even tho no seizure is due or happening very annoyed with product and app
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Could be better.
I use this for my 8 year old. There are several areas of improvement needed. (1) There needs to be a caregiver version of the app for my phone. (2) There should be the ability to set a schedule for things. Example: Set the sensing to LOW every day at a certain time and back to HIGH at a certain time. I try to remember to turn it to low for school, but sometimes forget which leads to false alerts while she is at school and panic for me waiting for the nurse to send the all clear. (3) The sleep info isn’t very accurate or useful. (4) For the watch only- my daughter has had it for about a month and the band loosens constantly and is falling apart already. (5) Ability to mark multiple false alerts at once. When she has a hard day, she gets quite frustrating and can sometimes set her watch off several times. It’s time consuming to mark each individual alert as a non-seizure, then wait for it to clear. (6) Bluetooth range isn’t great. (7) In future models, a touch screen to cancel alerts. My daughter struggles to get them cancelled accurately on the watch. And she’s not quick enough to get her phone out of the pouch. (8) Some way to make the app stay open or auto reopen. She closes it out completely all the time without realizing.
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Potential, below expectations
Does well notify when seizures occur, but Bluetooth range is terrible. Phone can be within 5 feet of me and will say disconnected.
Also the fact there is no light to see the notifications/time like a true watch at night is annoying for someone who has them at night predominantly.
Also the fact there is no light to see the notifications/time like a true watch at night is annoying for someone who has them at night predominantly.
The worst
Easily one of the worst account experiences I’ve had. It is virtually impossible to find direct links to your account online and through the app if you need to make changes. Customer support and availability is excruciating. There is no clear link or direction on how to upload your prescription so you can actually receive the device. We’ve paid for the device and now have no idea if it will come. The email thanking you for your order has a button “Link to Your Order”. You know it’s a bad sign when right below the button it says “if button doesn’t work use this link:”. Of course the link does nothing… Spent $400 on the device and have no idea if it will come or if it will work.
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Has potential but disappointed so far
I traded up because of the new features EpiMonitor has compared to Embrace2. I do like the extended battery life. What I don’t like are the advertisements for location and manual alerts but those are solely based on which plan you choose. The basic plan doesn’t alert your one caregiver to your location, it only calls them saying “__ needs assistance”. Without location it becomes a mad dash to find where I’m at. I like the ability to trigger a manual alert but not at the highest price plan and how to activate it is a bit complicated if someone has a tonic clonic seizure that the watch didn’t catch. We are very disoriented after these seizures and it is difficult to focus. I found it misses quite a few seizures but I haven’t experienced false alarms as others have stated. I would ask to add location to all plans or eliminate the basic plan altogether. Help us help you become the device that stands out above the rest.
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How proud l am of this medical watch
This watch has saved my life , who ever invented it they or a life saver x
Do not buy
Horrible comfort has missed two events and is horrible with children
Very Disappointed
The monitor appears to only pick up grand mal seizures. And the monitor has given us more false alarms than anything else. Very disappointed for the cost. The monitor only allows for one person to be alerted. The app has to be paired with the phone of the patient and only that phone has access to the data. This is a problem with a minor child or a person with cognitive deficits.
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Not sure it’s worth the money!
A lot of money for what you get. Lots of buzzing when no seizures. Still to be convinced
Good product, but ...
I recently began utilizing the EpiMonitor trading in my Embrace 2 Seizures Watch. While I appreciate the various features offered by these devices, I have faced some challenges when logging additional triggers during manual seizure recordings. At times, the experience can be somewhat disorienting, and there are instances where the device does not successfully detect a seizure event. Nonetheless, this product holds considerable value and has been a beneficial tool for my needs.
Show more
Massive Improvement
The EmbracePlus is a huge step up not only in build quality but in the fact that it’s FDA approved. Not to mention how much better the app is. 10/10 would recommend.
Annoying
It always wakes me up in the middle of the night even when I don’t have a seizure
Not for children
Bought this for my 9 year old who suddenly had a major seizure and almost died. It has to be near a phone (super close, upstairs it won’t work). He doesn’t have a phone because he is a child. Therefore it is absolutely worthless. I had to google the best things to detect seizures and this is one of them. I cannot imagine this working for kids though and they did not tell me he would have to have his own phone for it to work it’s. It makes no sense as a monitor because if he is more that 30 feet from my phone it stops working. And the levels of basing, standard, and premium are drastically different things you get. With the basic you only get the high level sensor which is for sleep only. The standard gets you the option to change the levels and the premium gets the data collection they state they have. Hoping to get the refund as I am not buying a phone for my son at 9 with downloading the app that charges more than the Apple Watch will. The Apple watch allows him to call me and also can download an app to track for half the price.
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