FOP Registry
Patient-Driven Data for a Cure
Archived App (Last seen on 12 May 2026)
This is an archived listing of the app previously available on the App Store.Although the app is no longer distributed by Apple, you can still view its description, screenshots, version history, ratings, and metadata for reference.
About
This application collects and organizes clinical and medical information for Fibrodysplasia Ossificans Progressiva (FOP). It aims to advance research and the development of new therapies by providing a comprehensive data resource for clinicians and patients.
What's New in FOP Registry
1.8
January 29, 2026
Minor Bug Fixes.
FAQ
What is FOP Registry?
FOP Registry is the largest collection of FOP clinical and medical information, operated by the IFOPA. It helps clinicians and researchers understand FOP to accelerate therapy development and serves as a resource for practitioners to raise awareness.
Who can participate in FOP Registry?
Anyone living with FOP is eligible to participate by entering information every six months. Doctors can also contribute by entering their patients' clinical information.
What is the goal of FOP Registry?
The goal is to provide a comprehensive insight into FOP through the contributions of physicians and individuals living with the disorder. This enables further research efforts and opportunities to develop therapies.
Is FOP Registry available on multiple devices?
Yes, FOP Registry is supported on iPhone, iPad, and iPod, making it accessible across various Apple devices.
How often is FOP Registry updated?
The latest version of FOP Registry is 1.8, and it was last updated on January 29, 2026. This indicates a commitment to ongoing development and improvements.
What is the age rating for FOP Registry?
FOP Registry has an age rating of 4+, making it suitable for a wide range of users, including children and adults.
Does FOP Registry have ads?
No, FOP Registry does not contain advertisements. It is a completely ad-free application.
What is the user rating for FOP Registry?
FOP Registry has received an excellent rating of 5.0 stars from one review, indicating high user satisfaction.
