NORD® IAMRARE®
Enroll in rare disease studies
About
This platform connects individuals with rare diseases and their caregivers to research studies and registries. Users can contribute valuable data through surveys and upload health records to help advance medical understanding. The app offers progress saving, notifications, and data visualization tools.
What's New in NORD® IAMRARE®
1.0.60
December 13, 2025
Bug fixes and performance improvements
Developer apps
FAQ
What is NORD IAMRARE?
NORD IAMRARE is a platform developed by the National Organization for Rare Disorders (NORD) that allows individuals with rare diseases and their caregivers to find and participate in rare disease studies and registries. It facilitates data contribution through surveys and the upload of selected health records to advance research.
Is NORD IAMRARE free to use?
Yes, NORD IAMRARE is completely free to download and use. It does not have any in-app purchases or require a subscription fee for participation in studies or access to its features.
What devices does NORD IAMRARE support?
NORD IAMRARE is available on iOS devices, including iPhone and iPad. It is designed to be accessible across these platforms for user convenience.
How often is NORD IAMRARE updated?
The latest version of NORD IAMRARE is 1.0.60, which was last updated on December 13, 2025. Updates typically focus on improving features, security, and expanding language support.
What languages does NORD IAMRARE support?
NORD IAMRARE currently supports English, Spanish, and French. The platform plans to introduce additional languages in the future to reach a wider user base.
How is my data protected on NORD IAMRARE?
The IAMRARE platform is built with security as a top priority and adheres to strict guidelines to ensure your data is protected. It is designed to safeguard personal and health information contributed by users.
Can I contribute data at my own pace with NORD IAMRARE?
Yes, NORD IAMRARE allows you to work at your own speed by saving your progress. You can return to complete surveys or upload information later, ensuring a flexible user experience.
What is the age rating for NORD IAMRARE?
NORD IAMRARE has an age rating of 17+. This rating is based on the nature of the medical information and research participation involved.
