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RareGuru: Rare Diseases

RareGuru: Rare Diseases

Caregiver & Patient Community

47 ratings
19 reviews
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🏥 Medical

Archived App (Last seen on 4 Apr 2026)

This is an archived listing of the app previously available on the App Store.

Although the app is no longer distributed by Apple, you can still view its description, screenshots, version history, ratings, and metadata for reference.

Details

  • Released
  • Updated
  • April 24, 2020
  • April 1, 2024

Features

Developer

RareGuru, LLC
✨Promote your app ✨
RareGuru: Rare Diseases screenshot #1 for iPhone
RareGuru: Rare Diseases screenshot #2 for iPhone
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iphone
ipad
⭐19
Reviews↘︎
❓5 answered
FAQ↘︎
📦w/o updates
Updates frequency↘︎
🖼️Get Icon
Icons↘︎

About

This app connects individuals and caregivers affected by rare diseases or chronic illnesses. It offers a platform to share experiences, track symptoms, and access a comprehensive disease database. Find support and resources to navigate your health journey.

✓Connect with patients and caregivers
✓Symptom tracking and notes
✓Rare disease and chronic illness database
✓Global disease map
✓Private and group chat
✓User matching by diagnosis/symptoms
Show original description

What's New in RareGuru

2.0.0

April 1, 2024

What's New in Version 2.0 - A Fresh Perspective We're thrilled to unveil the next chapter in our journey - Version 2.0 of RareGuru. This isn't just an update; it's a complete transformation, envisioned from the ground up to enhance your experience, streamline your navigation, and broaden your horizons. Here's what's new: Sleek, New Design: Dive into a world where elegance meets functionality. Our app has been completely rewritten to introduce a fresh look and feel, ensuring a more intuitive and engaging user experience. Enhanced Navigation: The introduction of a universal app drawer makes accessing your profile, preferences, and settings easier than ever. It's all at your fingertips, providing a seamless journey through the app. Revolutionized Disorder and Symptoms Management: We've reimagined how you manage disorders and symptoms. Our goal? To provide you with the tools you need for better management, understanding, and control. Symptom Tracker, Reimagined: Say hello to a new level of tracking with our improved symptom tracker. Now, you can log multiple symptoms within a day, edit past entries, and view your symptoms over any given period. It's empowerment at its best. Explore Like Never Before: Discover and connect in new ways with our Explorer feature. Search profiles or filter by disorder to find exactly what you want. It's your journey, personalized. Map Interface, Redefined: Navigate confidently with our new map interface, featuring improved markers that help you explore new insights about the rare disease community. Chat, Enhanced: Communication is key, and our new chat interface makes it more dynamic. Add images, share links, and engage in conversations that matter. Groups, Reimagined: Whether you're looking to join a public group or create a private sanctuary, our new group interface provides the platform to connect and share with others who understand. Smarter Matching Algorithms: Our improved matching algorithms now deeply consider your preferences, ensuring more accurate and meaningful connections. This version represents a leap forward, a testament to our commitment to innovation and continuous improvement. Your feedback has been instrumental in shaping this update, and we're excited for you to experience the enhancements firsthand. Update to Version 2.0 today, and transform how you engage with RareGuru. Here's to new beginnings!

More

User reviews

Most RecentHighest RatedLowest Rated

I'm almost in tears, this has been such a touching experience.

I've spent years with minor gripe that seemed just a bit abnormal for my age but I also wasn't the nicest to my body when younger so I dismissed them.

I came to find Rare Guru through an article I read, and really thought nothing of it at first besides it being a neat idea and my own experience in tech and frustration about my medical issues.

I've had a suspicion that I had something weird aka rare that was not being diagnosed. Well thanks to the article which feature this app and its founders, I asked for a lab test that probably nobody would ever have ordered because I don't fit the clinical profile. I mean, almost not at all.

Turn out it's abnormal and highly suggestive of hypophosphatasia.

There are 10s of thousands of people using this app, and the founders took time to talk to me through the app and even a video conference and provide me with lots of info since it is something they are familiar with.

My mind is truly blown. I finally have some answers for decades long questions that I probably would not have ever found was it not for that article and the story of Heather, her daughter and the app they created.

I know this review isn't really about the features of the app, but since I work in the internet tech space, let me just say that it's not the features and functionality or lack of bugs that make a great app.

It's whether it is effective for its intended purpose. I am one fretful individual who has proved that truly is the core of this app. It has been proved effective and I get to join an exclusive club of about 500 out of 330,000,000 people with this diagnosis. Let that % sink in. I'm off to buy a lottery ticket now.

Thank you, Heather, Bennett and family!
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MysteryShopper12MysteryShopper12

Amazing App

This app has solved so many problems for me. From connecting me to symptoms to helping me find a community, RareGuru has been a lifesaver.
galaxy sloth!!!,galaxy sloth!!!,

Response from developer

galaxy sloth, we love you more! Thank you for your review, feedback and for being one of our very first rare gurus. Please explore the RareGuru app, make new connections and give us a shout out if you think of ways to make our app better for those living with a rare disease or chronic illness. Stay well and welcome to the RareGuru community!

Dream come true

As someone with a rare disease that affected about 1 in 100,000 to 1 million people I’ve been looking for a platform to connect with others with the same thing and a place to track when my symptoms aren’t regular! If I could rate this 10 stars I would. Everyone needs to know about this app!
smumpssmumps

Response from developer

Smumps You are one in a million and we are so happy you found RareGuru! We are so thankful for your feedback and for you being here to help us form our community of support. Thank you!

RareGuru Is A Must

Wow I love RareGuru. You select your diagnosis and or symptoms if you wanna list your symptoms, then you get a selection of connections based on the information in your profile. You can make the list of your symptoms public or private and there’s even a symptom tracker. There’s no newsfeed or posting. Once you send a connect request and it’s accepted you get to talk one on one. So it’s like a community of people who share your diagnosis or symptoms with one on one emotional support through those good and bad days. I’d highly download RareGuru cuz here on RareGuru you aren’t alone. If someone doesn’t share your diagnosis or symptoms that you know of, then download RareGuru and I promise there’s people out in the world. You just haven’t met them yet but on RareGuru you will.
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Huge dice fanHuge dice fan

Response from developer

Huge dice fan, we are a huge fan of you! You have found your village and we're thankful that you will be here to welcome future RareGuru users with similar diagnoses and symptoms. Thank you for your feedback and for taking the time to write a review. Please reach out to us with any ideas to enhance the app for future builds. Stay well!

happy 2 find teens like me

This app is rlly cool and I was so relieved 2 find other teens like me! IDK that there was an app like RG!!!! It’s so cool and is very sleek and easy 2 use. It has helped me to DM other people going through the same stuff as me. I don’t feel so alone ⭐️ ⭐️ ⭐️ ⭐️ ⭐️
war man 2war man 2

Response from developer

War man 2 we hear you and teens are an important part of our community. You are not alone and we hope you make lifelong connections with other teens who are on similar journeys. Thank you for your review and let us know if you have any ideas or suggestions for the app. Stay well!

See 14 more reviews

FAQ

What does RareGuru do?

RareGuru is a free mobile application designed to connect patients and caregivers who are dealing with rare diseases or chronic illnesses. It provides a platform for users to share their experiences, learn about their conditions, and find support from others facing similar challenges.

What are the key features of RareGuru?

Key features include connecting with other users based on similar diagnoses or symptoms, a symptom tracker for monitoring and exporting data, a comprehensive database of rare diseases and chronic conditions, and a global disease map. Users can also engage in private or group chats for secure communication.

Is RareGuru free to use?

Yes, RareGuru is a free mobile app. While the description mentions in-app purchases, it also states the app is free to download and use for connecting with the community and accessing its features.

Who is RareGuru for?

This app is intended for individuals who are suffering from a rare disease or chronic illness, as well as their caregivers. It aims to combat isolation by fostering a supportive community where users can share stories, gain knowledge, and find resources.

Can I track my symptoms with RareGuru?

Yes, RareGuru includes a symptom tracker feature. Users can log their symptoms and take notes to evaluate their condition over time. This data can also be exported for sharing with doctors and specialists, aiding in better health management.