The Ehlers-Danlos Society

The Ehlers-Danlos Society

by The Ehlers-Danlos Society

44 ratings
6 reviews
Free
With Ads

Details

  • Released
  • Updated
  • October 16, 2024
  • June 3, 2026

Features

The Ehlers-Danlos Society screenshot #1 for iPhone
The Ehlers-Danlos Society screenshot #2 for iPhone
The Ehlers-Danlos Society screenshot #3 for iPhone
The Ehlers-Danlos Society screenshot #4 for iPhone
The Ehlers-Danlos Society screenshot #5 for iPhone
The Ehlers-Danlos Society screenshot #6 for iPhone
The Ehlers-Danlos Society screenshot #7 for iPhone
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About

This app provides essential information and resources for individuals with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). It offers tools for symptom tracking, medication reminders, and maintaining a personal health profile, aiding both patients and healthcare professionals.

Helpful resources for EDS/HSD
Personal health profile management
Symptom tracking
Medication reminders
Diagnostic tools
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What's New in The Ehlers

1.4.1

June 3, 2026

• The search tool to find a clinical trial is now called trialport

User reviews

Big Time Bug Issue

Downloaded the app the other day. While testing it out, to learn how it works, I have found a few problematic bugs (mostly regarding time keeping) that make recording symptoms and user experience challenging. I find the concept for this app to be fantastic and much needed within the community, and will gladly increase my rating once the issues have been resolved.

To start, when opening the app it will always bring the user to the initial “Welcome Page”. The user then needs to select an option to explore the resources and tools of the app, either “I’m an individual” or “I’m a healthcare professional”. This may be an intentional choice by the app developers, however when there is already an option to go between the two choices offered at the bottom of their selected page, there’s really no reason to keep landing on the welcome page when opening the app. In fact it makes for a smoother user experience to have the app open upon their last choice, and if they need to go back there’s always the “Home” button located on the navigation bar. For a community that experiences chronic pain, the longer it takes to reach the desired field input, the more likely pertinent information will be lost. Personally I don’t want to spend time and mental energy navigating an app when I’m experiencing symptoms. I just want the app to open within the “Tracker” page, so I can quickly input my symptoms, before the motivation gives out due to said symptoms. Is there a way to allow users to mark their preference for their ideal landing page?

The following bugs all reside within the “Tracker” page:
The next issue can be found when attempting to set up a “Weekly” schedule after the initial “Add Medication” is set up. Regardless of the weekly occurrence, the schedule will set itself as “Sun, Mon, Tue, Wed, Thu, Fri, Sat, Sun, … at 12:00”. The days continue off the page, while pushing the “Edit” button off as well. If you’re able to catch the side of the page at the right spot, then you’re able to access the edit button and go back in to “correct” the problem. However, when the new time is saved the reminder shows as 06:00a instead of 12:00p; the timing is off by -6 hr. The “Daily” and “Monthly” options mostly work as intended and their “Edit” buttons are easily accessible; however their reminder times are also off by -6 hr. Would adding an internal time zone preference to settings help mitigate this and following time issues? (The app seems to be overcorrecting GMT time by going in the opposite direction.)

The next two issues can be found in “Track Something”. The first is found when inputing the time, regardless of what is being tracked. However, with this and the following occasions the time is +6 hr off. Therefore, when inputing any time after 17:59/05:59p it will be tracked on the in app calendar as having occurred on the following day. (The app calendar seems to going off of GMT time.)

The second issue is that all “Other” symptoms are grouped together and placed under a “Custom” title. This makes it very hard to easily tally up occurrences or look at a glance, as you need to physically look through each date on the calendar to locate when they occurred. However, under the “Symptom” option all “Other” symptoms are tracked under their individual name. Could “Other” symptoms be universally tracked within the app under their individual name?

As far as I have found, while testing everything out, the “Symptom” page seems to be working as intended. Patterns of days, times, moods, frequencies, and cross-occurrences seem to be tracking accurately. However, when viewing “Symptom” symptoms on the in app calendar, with a time stamp after 17:59/05:59p, they are tracked on the following day. Their time is also off by +6 hr.

Again I think the concept of this app is fantastic, and would love to use it to consolidate all my tracking. However, the aforementioned bugs make that hard to implement due to accuracy and user experience. I do hope you’re able to resolve these issues.
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Response from developer

Hello, thank you so much for taking the time to share such a detailed review, it’s incredibly helpful. We’re sorry for the inconvenience this caused. The time zone issue you described was traced to a bug introduced in the v1.3 release (20th December), and we’re happy to confirm this has now been fixed in v1.3.1. We’ve also implemented your suggestion to remember the user’s last user type selection, so the app won’t keep returning you to the Welcome screen on launch (now, you’ll go straight through to the Home screen). On the “Other/Custom” tracking grouping: thank you for that suggestion as well, we'll work on a better solution for this for an upcoming release. If you notice anything still not behaving as expected after updating, or you have more ideas or feedback, please don't hesitate to get in contact — we’re actively improving the app and would love the chance to earn your updated review.

Very useful app!

I’m so glad that there’s an app to manage and log this kind of thing. I experience a lot of lag and glitching on the app, but it’s a very important thing to have, so I can put up with it. I wonder if there could be a way to get updates on news about EDS through this app? that would be a very cool and useful feature. Thank you for making something like this!
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Thank you for this app!

I love this app, the only issue I’ve stumbled upon is I’ll open it up and it’ll stay on the loading screen. I’ve learned that opening it, closing it, then opening it a second times does the trick! This is definitely not something I’d knock a star down for as it is easy to work around.

Not very functional…

I understand their intentions behind the app, but most things are incredibly buggy and crash (even after this latest update) or the links are broken. The app won’t even open majority of the time, it’ll just stay on the loading screen. Then, the reminder feature doesn’t have enough editing (like delete or pause etc) and gets bulky quick, and you can’t track what you have and haven’t taken for the day medication-wise. The symptom tracker is too limited, especially for having so many comorbidities. I like my Oura Ring for example, how I can create my own symptoms and tags and select from them, and then it tracks those and my other symptoms to see patterns, and I can print the results for my doctors. I just think this needed a lot more work before release.
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Response from developer

Hello, thank you for your feedback! We're pleased to say we've addressed these issues in the latest release. The tracker has been redesigned for a more user-friendly experience (this also solves the "bulky" issue as more medications are logged), and the loading screen bug has been fixed. Please don't hesitate to get in touch again if you have any more thoughts or ideas — we're actively developing the app and would love to hear from you.

Medication tracker not working

I love the EDS society and was very excited for a free tracking app. The tracker had me put in all of my meds and has a reminder feature. When you accidentally add an alarm you can’t remove it, only turn it off so the screen gets clunky.

But my main concern is that there is not a way to actually track the medication taken. It is just a list of daily meds but there is no checkbox or way to say “I’ve taken this med today - i don’t need to take it again” which to me, is the point of the tracker. I’m not sure if this was launched early or this is a bug. Would appreciate a contact about this
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Response from developer

Hello, thank you for your feedback! You're absolutely right about the issues you mentioned. We've redesigned the tracker in the latest release: now, you can mark doses as "taken", and the scheduler is easier to use with the option to disable alarms. Please don't hesitate to get in touch again if you have any more thoughts or ideas — we're actively developing the app and would love to hear from you.

FAQ

What is the Ehlers-Danlos Society app?

The Ehlers-Danlos Society app is a medical resource designed for individuals with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). It offers helpful information, a personal health profile, symptom tracking, and medication reminders.

Is the Ehlers-Danlos Society app free to download?

Yes, the Ehlers-Danlos Society app is available for free download on supported devices. It is supported by advertisements.

Does the Ehlers-Danlos Society app have ads?

Yes, the Ehlers-Danlos Society app contains advertisements. This is part of its ad-supported monetization model.

What devices support the Ehlers-Danlos Society app?

The Ehlers-Danlos Society app is compatible with iPhones, iPads, and iPods.

How often is the Ehlers-Danlos Society app updated?

The latest version of the Ehlers-Danlos Society app is 1.3.1, and it was last updated on January 2, 2026. This indicates a recent update, suggesting ongoing development and maintenance.

What is the age rating for the Ehlers-Danlos Society app?

The Ehlers-Danlos Society app has an age rating of 17+, indicating it is intended for mature audiences due to its medical content.

Can I track my symptoms with the Ehlers-Danlos Society app?

Yes, the Ehlers-Danlos Society app includes a symptom tracking feature that allows you to keep a record of when you experience symptoms.

Does the Ehlers-Danlos Society app provide medical advice?

The app provides practical information and resources, but users should always consult with a doctor before making any medical decisions based on the information provided.