I have breast cancer
I’m going okay
Needs to be updated
A few things: it should be clarified that this is for newly diagnosed women. I’m actually almost through radiation, all treatment decisions having been made- at least for now.
There needs to be updated information about immunotherapy, e.g. Keytruda as a newly approved regimen for TNBC. Or, if not approved, is being used.
Cool caps, e.g., Paxman, are an option and can save a large % of hair.
There needs to be an update re: support available during COVID-19. Halfway through my chemo I was not allowed a support person, etc. It took a while for online support groups to start and any comfort derived from friends, co-workers (all working from home) is virtual. If a woman had no family she would be alone with this. So Linda’s suggestion that this is the time to ask for what you need may be moot.
RE: the app, it would be nice to have the option to skip a section, although I’m thinking you want to be certain all information has been given. Very empathic and, surprisingly, human character, so kudos for that!
There needs to be updated information about immunotherapy, e.g. Keytruda as a newly approved regimen for TNBC. Or, if not approved, is being used.
Cool caps, e.g., Paxman, are an option and can save a large % of hair.
There needs to be an update re: support available during COVID-19. Halfway through my chemo I was not allowed a support person, etc. It took a while for online support groups to start and any comfort derived from friends, co-workers (all working from home) is virtual. If a woman had no family she would be alone with this. So Linda’s suggestion that this is the time to ask for what you need may be moot.
RE: the app, it would be nice to have the option to skip a section, although I’m thinking you want to be certain all information has been given. Very empathic and, surprisingly, human character, so kudos for that!
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Surprisingly good
Wow. Surprisingly well done. I was skeptical based off the fact that it was going to be pre-recorded Messages. The then I played around with it and it had really informative information and delivered in a humane and empathetic way. Our family went through this journey 2 years ago. It was devastating. We didn’t know what triple negative was. We asked a lot of t same questions that were answered in this app. So we can verify that it has great information. Well done.
The only feedback would be that when clicking talk it then has ask a question. Then it shows me questions. Delete one of those first two steps. It felt like I had to open a door to open a door.
Otherwise great job. Advertise it more w hospitals
The only feedback would be that when clicking talk it then has ask a question. Then it shows me questions. Delete one of those first two steps. It felt like I had to open a door to open a door.
Otherwise great job. Advertise it more w hospitals
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