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Details

  • Released
  • Updated
  • February 22, 2022
  • September 26, 2026

Features

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About

This app provides comprehensive information on Bladder Exstrophy, Cloacal Exstrophy, and Epispadias from leading experts. It offers educational videos and a private forum for community support and discussion, aiding individuals and families on their exstrophy journey.

✓Expert information on exstrophy conditions
✓Educational videos on human development and trauma
✓Private community forum for support and discussion
✓Guidance for parents and individuals with exstrophy
✓Resources from leading medical professionals
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What's New in We The BE

3.0.0

September 26, 2026

ASK THE CLINIC Ask educational questions and get answers grounded in the clinic's own video library. Every answer includes cited sources that link straight to the relevant moment in the video, so you can always check the original. Chats are not saved to your device. RESOURCES LIBRARY Trusted documents, videos, and guidance, now organized by topic and life stage — and openable without leaving the app. A REFRESHED EXPERIENCE New onboarding, updated branding, and reworked navigation make it faster to find what you need. MORE RELIABLE Improved chat and video usability, better error handling, accessibility improvements, and stability fixes throughout.

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User reviews

A Retired Pediatric Urologist

A wonderful simple yet comprehensive review of the complex subject of bladder and cloacal exstrophy. A great resource for parents that have a child with this disorder, and for these children. In addition the pediatrician, urologist, and pediatric surgeon, who are consulted for this relatively rare disorder are able to discuss this more fully with the family. Illustrations are simple, yet exact. This review can be highly recommended for parents and care givers who are faced with a child with exstrophy.
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Great Resource!

This is amazing! What a gift to have all the necessary information and resources easily accessible right on my phone. Thank you!

Wonderful

Great resource!

New Bladder app

This app is great - one of a kind resource and the navigation is easy. Love all the info provided.

Very useful free app!

I found this app very useful for children and parents! There are easy-to-understand informative videos and explanations! And there is a communication section. Great app!!

FAQ

What medical conditions does Bladder Exstrophy cover?

Bladder Exstrophy provides information on Bladder Exstrophy, Cloacal Exstrophy, and Epispadias. It aims to offer comprehensive details for individuals and families affected by these conditions.

Who developed the Bladder Exstrophy app?

The Bladder Exstrophy app was developed by the team at OKC Kids Urology in partnership with the Association for Bladder Exstrophy Community (A-BE-C).

Is Bladder Exstrophy available on Android devices?

Currently, Bladder Exstrophy is supported on iPhone and iPod devices. Information on Android availability is not provided.

How often is Bladder Exstrophy updated?

The app was last updated on January 16, 2024, indicating ongoing maintenance and potential for future content additions. The latest version is 2.0.0.

What is the user rating for Bladder Exstrophy?

Bladder Exstrophy has a perfect rating of 5.0 stars based on 9 user reviews, suggesting a highly positive user experience.

Does Bladder Exstrophy have ads?

No, Bladder Exstrophy does not contain advertisements. The app is free to download and use without any ad interruptions.

Can I connect with other users through Bladder Exstrophy?

Yes, Bladder Exstrophy features a private forum where users can ask questions, discuss experiences, and find support and advice from others in the exstrophy community.

What age rating does Bladder Exstrophy have?

Bladder Exstrophy is rated 4+ by the app stores, making it suitable for users of all ages seeking information and support.