MDS Foundation, Inc. vs Know Your CML

The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. In response to the needs expressed by patients, families, and healthcare professionals, Mds Foundation have established patient advocacy groups, research funding, and professional educational initiatives. The MDS Foundation is a publicly supported organization, exempt from federal income tax under section 501(C)(3) of the IRS code. A major Foundation effort is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients. This app provides quick access to patients, caregivers, and healthcare providers, to the important services that the MDS Foundation provides. These include our Worldwide Centers of Excellence, Upcoming Patient Forums and Events, and our numerous online resources.

Know Your CML is a self-management instrument empowering patients and caregivers living with chronic myelogenous leukemia to monitor side effects, compare test results with ones from published clinical trials, benchmarking data with other patients in anonymised way. The app includes updated treatment guidelines and community news from global events on CML. Know Your CML is created by CML Advocates Network, connecting 128 patient organisations in 93 countries on all continents. Its aim is to facilitate and support best practice sharing among patient advocates across the world. This app is created by the patients for the patients. Application is currently available in English, but will be translated to Spanish, French, Russian, Arabic, German languages in the near future. Know Your CML is free to use, no personal data will be collected and stored in the application.