myPROBE vs Hemotrack

Complete the PROBE questionnaire on-the-go! The patient reported outcome, burden of experience (PROBE) questionnaire was developed from patients and for patients. The PROBE study group invites you to participate in a multi-national, patient-focused project to investigate and directly probe patient perspectives on outcomes that affect your own life and care. myPROBE allows you to: * Quickly complete the PROBE questionnaire, offline or online * Create a user to link questionnaires that you completed at different time points * Receive notifications when it’s time to repeat the questionnaire * Complete the questionnaire as a guest (no login required) * Save an incomplete questionnaire and come back to it later * If you live in Canada, simply login using your MyCBDR account

Hemotrack is a comprehensive app designed to streamline the management of hemophiliac patients, catering to both healthcare professionals and patients themselves. With a user-friendly interface and robust features, Hemotrack empowers users to efficiently organize treatment plans, track progress, and facilitate communication between doctors and patients. Features for Healthcare Professionals: - Patient Management: Create and manage patient profiles, allowing for personalized care plans tailored to individual needs. - Event Scheduling: Schedule events such as workouts, appointments, and medication reminders directly into the patient's calendar for easy access and adherence. - Workout Videos: Access a library of workout routines accompanied by instructional videos, ensuring patients perform exercises correctly and safely. - Communication Tools: Seamlessly communicate with patients through in-app messaging, providing guidance, support, and answering queries promptly. - Hemarthros Tracking: Record and monitor hemarthros events, enabling better management and adjustment of treatment plans as needed. - Text Records and Images: Document patient progress with text records and image uploads, facilitating comprehensive monitoring and evaluation. - Body Measurements: Track and analyze body measurements over time to assess treatment efficacy and overall health improvements. Features for Patients: - Event Reminders: Receive notifications for scheduled events, including workouts and appointments, ensuring patients stay on track with their care plans. - Workout Guidance: Access detailed workout plans with instructional videos, empowering patients to engage in safe and effective exercise routines at home or in the gym. - Messaging Platform: Communicate with healthcare professionals directly within the app, enabling convenient access to support and guidance whenever needed. - Feedback Mechanism: Provide feedback on completed workouts, allowing patients to share their experience and preferences, further customizing their treatment journey. Hemotrack serves as a vital tool in empowering both healthcare professionals and patients in managing hemophilia effectively. By centralizing communication, tracking progress, and providing valuable resources, HemoTrack aims to enhance patient outcomes, improve adherence to treatment plans, and ultimately contribute to a better quality of life for individuals living with hemophilia.