Epilepsy Journal vs Alongside

Epilepsy Journal is an app which allows you to quickly document daily variables concerning your epilepsy, such as seizure triggers, types etc. The information you provide is organized into easy to read graphs which allow for quick visualization of your individual epilepsy trends and patterns overtime. This app can serve as a valuable communication aid, by allowing you to generate a straightforward and professional report which can be shared with your physicians. In general, we hope that this App will allow you to: 1) track epilepsy trends and patterns over time 2) objectively determine effectiveness of your epilepsy treatments 3) improve success of doctors appointments Epilepsy is a chronic neurological disorder which affects 1 in 26 people worldwide. It can have a relapsing, remitting, and unpredictable course. Treatment of epilepsy can be frustrating, and has been accurately referred to as being similar to the popular “whack a mole” game. Whether your epilepsy is mild or severe, refractory or controlled, it is critical to objectively and consistently monitor certain factors such as number of seizures, seizure triggers, AED drug or ketone levels, and other vital information. Keeping a detailed epilepsy journal will allow you to quickly notice any changes to your epilepsy, as well as provide you with impartial evidence as to whether your epilepsy treatment is truly effective or losing effectiveness over time. App Features: - Easy to use - Record seizure details (as much or as little as you like) - Visual representation of data - Generate reports - Keep track of medications with reminders - Customizable to fit your individual epilepsy - Full version completely FREE Our Story/ Mission: Our daughter Olivia is our inspiration for this app. Olivia has a refractory and severe epilepsy which began at age 1. Once Olivia´s epilepsy started we were advised by our physicians to keep a written epilepsy journal, in order to track trends and treatment response overtime. Although the journal was helpful in allowing us to objectively monitor the effectiveness of her epilepsy treatments, it was very time consuming and tended to be disorganized; As well, the hundreds of pages of notes did not help us when it became most critical to quickly and accurately summarize months worth of seizure history, (for example during emergency hospital visits or follow up appointments). During our experience navigating the neurology health care system, we found accurate and effective communication to be a key factor in successfully working with doctors and achieving ideal seizure control. We created this app as a free and simple way to monitor your epilepsy; track trends and patterns, objectively determine effectiveness of seizure treatment overtime, and improve success of doctors appointments. Since epilepsy contains dozens of ever changing variables, we decided to organize data into simple visuals which demonstrate seizure trends and patterns over a time span of months to years. Our epilepsy journal allows you to quickly document all the important variables concerning your epilepsy, and to generate a simple and easy to read report to print out or email your doctors. We hope that this app enables you to grasp a better understanding of your own individual epilepsy, and that it empowers you as an effective communicator and advocate within your epilepsy health care team.

Alongside is a private epilepsy companion for iPhone, iPad, Mac, and Apple Vision Pro. It is designed for adults managing their own care and for parents, partners, and caregivers supporting someone else. RECORD WHAT HAPPENED - Log seizures, possible seizures, auras, medication side effects, falls or injuries, and other events. - Add the event type, time, duration, awareness, recovery, context, rescue medication use, injury, emergency response, and notes. - Record who made an entry when someone else is helping. STAY ORGANIZED - Keep medication schedules and record taken, skipped, or missed doses. - Set optional local medication reminders with medication names hidden by default. - Add daily check-ins for sleep, mood, stress, illness, and whether medication was taken as planned. - Search and filter a single timeline of events, doses, and check-ins. - Store a user-entered care plan, medication list, and care contacts for offline access. - Export the complete record for a profile as unencrypted JSON whenever you choose. PREPARE FOR CARE CONVERSATIONS Review a free 30-day summary of recorded events, durations, medication entries, check-ins, and context. Check the summary for accuracy, then share it for an appointment when you choose. Alongside Premium adds 90-day and one-year views, shareable summaries across those longer ranges, and separate profiles for up to five people. PRIVATE BY DESIGN Alongside stores records on your device and syncs them through your private iCloud database so they can become available on supported devices signed in to the same Apple Account. You must be signed in to iCloud, and iCloud must be available. Initial sync and changes made while offline can take time to appear on another device. Third-party app data in iCloud is encrypted in transit and on Apple’s servers. Alongside has no developer-operated account, advertising, health-data analytics, or tracking. The app hides records when it is inactive. An exported JSON file contains sensitive health information, is not encrypted, and becomes a separate copy controlled through the location or service you choose. An eligible Alongside Premium purchase can be available across supported Apple platforms through the App Store. Records sync only through the private iCloud database for the Apple Account using the app; subscription access does not share health records with another Apple Account. Optional repeatable one-time support purchases are separate from Premium. They do not renew and do not unlock features. IMPORTANT Alongside records and organizes user-entered information. It does not detect, monitor, predict, diagnose, or treat seizures. Care-plan instructions are not checked by Alongside; review them with a clinician. Alongside cannot summon help or contact emergency services. In an emergency, contact local emergency services. SUBSCRIPTION AND TERMS Alongside Premium is an auto-renewable subscription, offered as a monthly or an annual plan. Pricing for your country or region is shown in the App Store before you purchase. Payment is charged to your Apple Account at confirmation of purchase. A subscription renews automatically unless it is cancelled at least 24 hours before the end of the current period. Manage or cancel a subscription in your Apple Account settings. Terms of Use (EULA): https://www.apple.com/legal/internet-services/itunes/dev/stdeula/ Privacy Policy: https://stacktrace-studios.com/privacy/alongside/