EHCucate vs HM

Information on rare bleeding disorders and novel therapies is abundant and comes in various forms, which makes it even more difficult when searching for answers…and the answers can be complex and confusing! This is why the European Haemophilia Consortium has processed years of research and publications from reliable and specialized sources to create EHCucate - an educational and dynamic app tailored to you! Easy and engaging navigation through the educational content in the mobile app, with an extensive glossary of terms. Bookmark elements you want to add to your personal library, improve your knowledge and test your understanding with a multitude of quizzes, explore a variety of in-app media, track your progress, check our suggestions for further exploration on your topics of interest. EHCucate is the ultimate resource repository and educational tool for patients, patient advocates and anybody interested in novel therapies for rare bleeding disorders.

This is a health-related quality of life questionnaire asking your views about how your disease condition and/or treatment is affecting your daily life. In the absence of a haematology specific patient-reported outcome (PRO) measure for use in both clinical practice as well as clinical research, the European Haematology Association - Scientific Working group for ‘Quality of Life and Symptoms’, as part of its remit embarked on development of a new PRO measure for such purpose.