Know Your CML vs JOE in MDS

Know Your CML is a self-management instrument empowering patients and caregivers living with chronic myelogenous leukemia to monitor side effects, compare test results with ones from published clinical trials, benchmarking data with other patients in anonymised way. The app includes updated treatment guidelines and community news from global events on CML. Know Your CML is created by CML Advocates Network, connecting 128 patient organisations in 93 countries on all continents. Its aim is to facilitate and support best practice sharing among patient advocates across the world. This app is created by the patients for the patients. Application is currently available in English, but will be translated to Spanish, French, Russian, Arabic, German languages in the near future. Know Your CML is free to use, no personal data will be collected and stored in the application.

JOE – Journey Of Empowerment is here to help empower myelodysplastic syndrome (MDS) patients and their families and carers, supporting them through their journey from initial diagnosis to treatment. By completing lessons and quizzes, users can confidently improve and test their knowledge of MDS, how it affects the body, how to manage symptoms and empower them to gain a better understanding of medical findings, treatments and where to find support.  DISCLAIMER The MDS JOE app and portal service is strictly for educational purposes only and should not be treated as medical advice, nor as replacement for seeking or following professional medical advice, diagnosis or treatment from a qualified, professional healthcare provider. All information, images and graphics and sources are for general information purposes only. If you have symptoms, questions or concerns regarding your overall health, diagnosis or treatment you are strongly encouraged to contact your healthcare provider immediately. MDS JOE contains links to external sources and websites which are not managed or maintained by us, and as such we cannot guarantee the accuracy, relevance or reliability of the information contained on those sites. You should not delay or refuse to seek professional medical advice based on the information you access and view on this app.