EpiDiary vs Seizure Prediction App

Important note: This app is by invitation only. Please do not use this app unless you already have a username and a password for this app. Do you or a loved one have epilepsy? If you do, most likely you have been asked to keep track of seizures, medicines, and how you feel. EpiDiary can easily keep track of epilepsy symptoms and also helps in epilepsy awareness. This application can help you track and monitor epilepsy quickly and more easily than keeping paper diaries. EpiDiary has Visual Medication Management (VMM) technology to improve your safety in taking medications. In a world where epilepsy medications from different sources are provided to patients, the color, size and shape of the pills changes frequently. Having large, actual photos of your own medications on your phone provides new and better capabilities that can help you. EpiDiary can do seizure monitor to an extent this way. EpiDiary lets you use the new technology to manage your epilepsy as you use to simplify the rest of your everyday life! It lets you record real-time details about seizures and monitoring seizure time, medications, side effects, moods, triggers, and you can even include detailed notes - all from your iPhone. You can easily keep track of epilepsy symptoms and be ready in case you notice chances of epileptic seizure. With EpiDiary you can track your sleep, which might be associated with seizures and effectively do seizure monitor. Epilepsy awareness is still very low in people and having Epidiary at your aid will definitely make a difference. When your entry is completed, it is synched to your diary on EpiDiary.com where you can generate personalized reports to bring to medical visits, providing your doctors and nurses with not only snapshots of recent events, but also long-term trend data, both key to assessing treatment effectiveness. You can monitor seizures effectively. By reviewing graphs and other reports, you can visualize trends that can help you and your healthcare professionals improve your treatment. FEATURES * Record and Monitor Seizures (single or clusters) * Monitor and Record Epilepsy Medications/Medicines, when to take them and when to refill them * Record Triggers (10 standard or customize your personal trigger) * Record Side Effects including the severity of the reaction. * Get reminders for your epilepsy medications and refills ADDITIONAL FEATURES that are available when you access your diary on https://EpiDiary.com including: - Personal Medical History Record to Detect and Predict Early Epilepsy Warning - Customized Reports – including graphs which can be printed or emailed - Setup Reminders for medication, refills, or other personal events via text message or email - Uploading photos or files to attach to a daily record - Medicine Organizer - Summary of Notes - and more REQUIREMENTS: - Internet Access required to sync data to your diary on epidiary.com Take Control and Get Started Today with EpiDiary. Please email comments and suggestions to info@irody.com

The unpredictability of seizures causes distress to people with epilepsy and their caretakers. If seizures were predictable, the element of uncertainty would be reduced or eliminated. A child may be too young or impaired to identify their own experiences that present before the actual seizure; however a caretaker/parent may be able to. A well-designed tool for seizure prediction based on clinical signs and seizure triggers is needed. Our goal is to create an electronic diary (e-diary) program through the use of a downloadable app, developed by the joint efforts of us (the study investigators), the caretakers of children with epilepsy, and software developers, which centers on the caretaker’s experience. We expect this tool to be easy to use and capable of recording clinical signs and seizure triggers to reliably predict seizures clinically by the caretakers of children with epilepsy. This app will also expect caretakers to track seizure occurrence. The app will deliver twice daily morning and evening surveys and will also have an option for the caretaker to self-initiate a survey in response to a clinical symptom before a seizure or a seizure occurrence. Videotaping clinical symptoms or the seizure occurrence will also be an option. If we are able to demonstrate reliable seizure prediction in this population using this tool, it will lead to future interventional studies, in which a medication may be given during times of high seizure risk, to prevent a seizure from occurring. Successful prevention of seizures would reduce the health and economic burden of epilepsy, and improve quality of life, at least until treatments that cure epilepsy are developed. The app also allows caretakers to track the sleep of the children via Apple healthkit and Fitbit.