Progeria Connect vs PURPOSE Network

Progeria Connect is a private, online social platform for members of the The Progeria Research Foundation’s global community, built to connect and unite our small but diverse network of families in a secure and confidential environment. Once a member is accepted into Progeria Connect, patients, family members, researchers and clinicians, and other caregivers will have access to: Current news and information: stay updated with the latest research and other Progeria-related news; Live activity feeds: see what other members are up to and share experiences; Member forums: ask questions and join conversations; Private messaging: for 1-to-1 conversations with another member; Member directory: easily find and contact other site members around the world; Private user groups: connect with members of the community who share common interests; Host and attend online events: no matter where you are in the world! Feature Breakdown Powerful search & targeting filters that enable members of the community to find and connect with each other easily and effortlessly; Post and share messages with other members to see via a news feed. Add pictures, videos or links; Organize or attend virtual meetups for your community and add them to your calendar; Push your events to your Facebook, LinkedIn, and Twitter pages to boost exposure and attendance; Leverage your community network to publicize your projects, research, foundations and campaigns; Contribute to discussion forums around specific topics; Join community groups within the broader community to allow you to connect with like-minded people on a similar journey; Planning a trip abroad? Let local members know you when you will be there and see who is available to meet up; Communicate with other members through Direct Messaging; Tag people in your posts or comments to make sure they see them and hashtag your posts to make them searchable.

The PURPOSE Network unites pain researchers across the continuum of pain research, from all disciplines and at all career levels. Research relies on ingenuity, creativity, and dedicated partnerships between research teams and research participants. Strengthening system capacity by investing in training the next generation of scientists to do this work is essential for reaching the goals of the Helping to End Addiction Long-term® Initiative, or NIH HEAL Initiative®.