HAEA App vs ADARx Concierge

The HAEA Events App is the official mobile platform developed by the U.S. Hereditary Angioedema Association (HAEA) to support the organization’s national conferences, regional meetings, educational programs, and advocacy events. Built specifically for the rare disease community, the app is designed to provide secure, streamlined access to event information and to support year-round programming. It is used by patients, caregivers, medical professionals, and advocates participating in HAEA-hosted events across the United States. The app enables HAEA to deliver real-time updates, digital agendas, and secure communications to its broad user base, while maintaining full compliance with data privacy and accessibility standards. It is free to download and use, with no in-app purchases or advertising. Core functionality includes: 1. Personalized user agendas with session and activity tracking 2. Real-time push notifications and updates 3. Speaker bios and session descriptions 4. Venue maps and accessibility information 5. Feedback surveys and evaluation tools 6. On-demand access to event materials and handouts The HAEA Events App is not limited to a single conference. It serves as an enduring tool that powers all of HAEA’s key programs throughout the year, including the bi-annual National Patient & Medical Conference, regional advocacy workshops, youth leadership initiatives, and provider education sessions. Each event is integrated into the platform, allowing registered users to access relevant content based on their participation. A critical feature of the app is its secure integration with HAEA’s internal constituent database and event portal. This connection enables the delivery of customized user experiences, including personalized travel and event itineraries that reflect each individual’s registration details, lodging, transportation, and session selections. It ensures users have accurate, up-to-date information at every step of their event journey. The app was built to meet the needs of a medically vulnerable population and is optimized for privacy, reliability, and ease of use. It supports accessibility standards and helps bridge geographic and mobility barriers that may otherwise limit participation in HAEA programming. The HAEA Events App strengthens community engagement and supports the organization’s long-term mission by enabling continuous education, communication, and connection among those affected by Hereditary Angioedema.

ADARx Concierge is dedicated to lessening the impact of clinical trial participation on patients and their families. By taking care of travel to and from the hospital, managing fast expense reimbursements and providing a suite of innovative solutions, we help avert drop-outs that happen for avoidable reasons. This relieves pressure on clinical research hospitals and provides a duty of care to those who matter most, our patients. Welcome to ADARx Concierge!