False alerts often
We just recently started using this app, within the past week. It has so far sent me 12 seizure alerts, 7 today alone. My son was at school every time it happened and clearly was not having a seizure.
Lack of response
Have emailed the creators twice in the last 2.5 weeks with no response. In the past they were quick to reach out. App has missed seizures my daughter has experienced and am hoping for possible advice. Will delete app soon and look elsewhere if no response.
ZERO SUPPORT!
I have been trying for 2 months to contact them for support with no luck. I have spoken with the Epilepsy Foundation as well since this is their recommended app. And by the way, I had a seizure while wearing my watch with the app active with no alarm.
Doesn’t work
Don’t waste your money if you have local convulsions. It doesn’t work with arm clenching and rapid shakes. Maybe it works with a full body convulsion, and/or fall, but didn’t work for my son when his hand clenches and arm shakes while sleeping. Didn’t pick up heart rate increase either. Nothing went off, no alert. Good thing he sleeps with us. Still haven’t found a device to help with ESES-CSWS / DEE-SWAS seizures
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Amazing app - but issues with health tracking
I love the heart rate / motion detector trackers shown on my watch - but my watch died before noon each day and my health tracker noted that I had met my move / calorie goal everyday before noon (apparently working off of only my heart rate) even though I work in an office setting and spend my day seated.
If these two things could be changed, or if there’s something I can do to revise settings on my side, the app would be perfect.
If these two things could be changed, or if there’s something I can do to revise settings on my side, the app would be perfect.
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Sorry, HR isn’t enough
My son (7) had a seizure in the morning, no alarm went off. HR alone isn’t enough data to determine an on coming seizure. Additionally, it doesn’t distinguish between ordinary awake activity which may raise the HR from at rest activity where a sudden HR spike might indicate early warning for a potential seizure episode. To add, the types of epilepsy list s very short. My son has ESES/CSWS aka DEE-SWAS, which is seizures only during sleep, a rare for of seizures but these more rare and nuanced types should be accounted for
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Updates Need Work
Would be fantastic if the watch would sync without needing continuous rebooting of both devices. Seems as though when taking off/charging, synchronization is lost. This also occurs if power cycling. Should just be a re-sync process. The app seems to flip back to phone all of the time. This occurs even if the watch is logging.
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good app, bad at logging medications
no complaints except for the medication logging system. i deleted a medication yet i still get notifications to take it, even though the app still says i have no medications logged. i also can’t edit a medication once i’ve logged it. otherwise, this is perfect for someone with controlled epilepsy! lots of love to the creator, been on a tech support call with him and seems nice and dedicated.
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Account set doesn’t even work
Downloaded this app to try monitoring my daughter’s seizures. Add Patient info screen fails to save and the app is nonfunctioning unless I add a family member. I’ve tried to send invites to add family member from the app and nothing works. Zero confidence in an app that costs $250 per year if you can’t even get past the account setup phase.
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Login
How do you login?
It’s not giving me a code every time I try to login my email. It says my email is wrong.
It’s not giving me a code every time I try to login my email. It says my email is wrong.
Expensive and doesn’t work
The title says it all …
I love this app.
I i haven’t had a seizure in over 5 years and I still use this app 24/7.
I like that this app offers so many different features. I appreciate that they don’t just let you add contacts to be alerted if you have a seizure, but it allows you to send out a test alarm to your contacts.
I also really like the med reminder. I am really good about taking my meds, but my husband always asks me if I remembered to them. Now I can check them off and he gets the alert that I have taken them.
Another feature that is nice that would be helpful to those with little ones or those that are not controlled is that you can give someone access to get into your app.
I like that this app offers so many different features. I appreciate that they don’t just let you add contacts to be alerted if you have a seizure, but it allows you to send out a test alarm to your contacts.
I also really like the med reminder. I am really good about taking my meds, but my husband always asks me if I remembered to them. Now I can check them off and he gets the alert that I have taken them.
Another feature that is nice that would be helpful to those with little ones or those that are not controlled is that you can give someone access to get into your app.
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Peace of Mind!
My husband suddenly had two Tonic Clonic seizures where he stopped breathing for a significant amount of time. Needless to say I am now paranoid to leave him alone. I started researching options, there were a few out there but had bad reviews. I came upon this one with much better reviews and endorsed by the Epilepsy Foundation. We did the free trail and wasn’t sure so paid for one month before committing to the full year. Had questions so made an appointment with the developers and had a great conversation with them.
Fortunately, he has not had any more seizures but has had 2 false alarms, glad to know it is working! Had to turn down the sensitivity and seems to have helped. I like the latest update so now it is running in the background.
I normally keep my phone on do not disturb at night so I saved the number from the text as a favorite and have allowed notifications to bypass the setting to not miss a notification.
I occasionally have additional questions and Amir has answered our emails quickly. This is very much appreciated!
I highly recommend this app, it allows me to live with a peace of mind!
Fortunately, he has not had any more seizures but has had 2 false alarms, glad to know it is working! Had to turn down the sensitivity and seems to have helped. I like the latest update so now it is running in the background.
I normally keep my phone on do not disturb at night so I saved the number from the text as a favorite and have allowed notifications to bypass the setting to not miss a notification.
I occasionally have additional questions and Amir has answered our emails quickly. This is very much appreciated!
I highly recommend this app, it allows me to live with a peace of mind!
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Crash
Great app but seems to be crashing with new version
Several settings
The app offers several settings that you can set depending on how you need the app setup for your loved one. My issue was that not all of the features were available during my trial period. It also is impressive to me that they are backed by the Epilepsy Foundation. I personally and thankfully don’t have that many seizures to warrant paying that much for the subscription. I wish it wasn’t so pricey.
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Works good so far
It’s seems to work good for me so far and the app seems to get better with each update
A good app
This app is great to keep an eye on your family and easy to access. I would definitely give it a try
Response from developer
Thanks so much for the review!
Amazing!
As a college student, this is a great app to have to help alert my family and roommate! Every update continues to make the app better and this is the only seizure alert app that I trust.
Response from developer
Thanks so much for the review :) Happy we are able to give you and your family independence and peace of mind!
Great app and mission
Great app that combines many needed epilepsy components of life. Made by developers who saw a purpose in helping a friend. Cheers
Complicated signup
I had high hopes using this for my 5 year old with epilepsy wearing an iwatch. Unfortunately there is no way to configure this for her without sending her a code that she needs to activate. Requires child to have email address and device other than watch and that’s not practical. Would love to have tried it but the app continues to say no one in the family has epilepsy and as a parent I can’t change my configuration as the one with epilepsy.
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