False alerts often
We just recently started using this app, within the past week. It has so far sent me 12 seizure alerts, 7 today alone. My son was at school every time it happened and clearly was not having a seizure.
Lack of response
Have emailed the creators twice in the last 2.5 weeks with no response. In the past they were quick to reach out. App has missed seizures my daughter has experienced and am hoping for possible advice. Will delete app soon and look elsewhere if no response.
ZERO SUPPORT!
I have been trying for 2 months to contact them for support with no luck. I have spoken with the Epilepsy Foundation as well since this is their recommended app. And by the way, I had a seizure while wearing my watch with the app active with no alarm.
Doesn’t work
Don’t waste your money if you have local convulsions. It doesn’t work with arm clenching and rapid shakes. Maybe it works with a full body convulsion, and/or fall, but didn’t work for my son when his hand clenches and arm shakes while sleeping. Didn’t pick up heart rate increase either. Nothing went off, no alert. Good thing he sleeps with us. Still haven’t found a device to help with ESES-CSWS / DEE-SWAS seizures
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Amazing app - but issues with health tracking
I love the heart rate / motion detector trackers shown on my watch - but my watch died before noon each day and my health tracker noted that I had met my move / calorie goal everyday before noon (apparently working off of only my heart rate) even though I work in an office setting and spend my day seated.
If these two things could be changed, or if there’s something I can do to revise settings on my side, the app would be perfect.
If these two things could be changed, or if there’s something I can do to revise settings on my side, the app would be perfect.
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