ACTUALLY FREE
As someone that has been chronically ill for 16 years, get this. You can customize symptoms and treatments. Then, the app will generate monthly PDF reports, again for free, of those symptoms and interventions with graphs.
You do not have to give access to your EMR (medical record). That is your choice to do so. I have not and am able to use the app without any issues. You can also search for other research studies to be a part of.
All-in-all this app is amazing. Get it. You literally have nothing to lose. Plus your input can help with research and cures!
You do not have to give access to your EMR (medical record). That is your choice to do so. I have not and am able to use the app without any issues. You can also search for other research studies to be a part of.
All-in-all this app is amazing. Get it. You literally have nothing to lose. Plus your input can help with research and cures!
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Worse than Useless
App is supposed to track multiple activities, symptoms and pacing budget. Doesn’t really do any of that - AND you have to give them your health data to find that out AND then they make it impossible to cancel membership or remove the app from your phone. Claims to work with Apple Watch, but really doesn’t. It does connect to my Health app on iPhone, but the only metric it displays from that app is number of steps, which adds nothing to what I had without this app. App has no Help feature, no way to submit questions or get tech help, or other guidance about how to use this app. I’ve wasted three hours answering survey questions, trying to make use of this thing, and then trying to get rid of it. Total waste of time.
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Great Symptom Tracker
I have multiple chronic and autoimmune conditions.I had been trying different symptom trackers looking for one that was easy to use and gave a usable record of my symptoms. Not only that, it interfaces with multiple longitudinal studies so my symptoms can contribute to studies looking to gather information and manage multiple diagnoses. Win/Win!
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Response from developer
We are so pleased to hear that you are finding our app to be advantageous for you! Thank you for letting us know.
Hard to delete the app
On the pregnancy plus app this app is advertised for you to get a free fitbit if you share your data and join a program.. i think its just for you to sign up. I want to delete my account but it makes it hard to do so. I emailed support and they say they withdrew me from the program but the app says im still apart of it.. its a waste of time other apps have more information than this. I feel played and i am still struggling on getting my account deleted.. smh
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Response from developer
Thank you for reaching out. Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue.
Best symptom journal app
This app is a dream for those with chronic illnesses. From the ease of merely tapping a symptom within Symptom Shark to the notices of energy output needed to complete a survey in Solve Together, this app is what I’ve been looking for. You can also print your data to take with you to the doctor. So easy!
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Response from developer
Thank you for your feedback and for your five star review. We are so glad to hear that you are finding this app valuable!
Wonderful to proactively participate!
This app combined with my Fitbit predicted my second case of Covid 19 BEFORE I felt ill enough to take a test. The app prompted me to test, based on the Fitbit info sent to it. I believe it was a rise in my resting heart rate and other sleep factors.
I was indeed positive and therefore was able to start Remdesivir right away. I am immunocompromised and my doctors wanted to be proactive about the disease.
The app is easy and a good way to track disease progression and also to track vaccination and testing.
The developers are definitely rockstars in my book.
I was indeed positive and therefore was able to start Remdesivir right away. I am immunocompromised and my doctors wanted to be proactive about the disease.
The app is easy and a good way to track disease progression and also to track vaccination and testing.
The developers are definitely rockstars in my book.
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Response from developer
Thank you for your positive feedback!
Colour is everything
I have Long Covid and have used many many symptom tracking apps and websites over the years. Most of them are monochrome and quite blocky to use-this one in contrast has shapes and custom colours which mean a whole lot more to me. They also mean it’s more friendly and less stressful and energy consuming to use!
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Loading error
This app worked great for a couple years but in the last few months it comes up with a loading error and is now unreliable.
Response from developer
Thank you for reaching out. Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue.
App is connected to dev environment
When I try to log in it tries to connect to “.dev” api.
Don’t want me
After entering my contract info, they ask about COVID immunization. I have had two shots and three boosters. But the choices don’t have an option for boosters, so I chose “other.” After entering the date of my first COVID immunization it simply said I could not participate with no further information. I tried going back but the app won’t let you. So I deleted it.
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Response from developer
Your feedback is much appreciated; thank you.
More Covid vaccine data
Hi there, please add the ability to record additional Covid vaccine boosters to the app. As an immune compromised person we have additional Covid boosters taken over a regular person. The app only allows to add a total of 4 shots and I have 5 shots taken.
Thanks in advance!
Thanks in advance!
Response from developer
Your feedback is valuable and much appreciated; thank you.
Broken
I got an at home rapid test and tested positive for covid. My job needs documentation to be able to pay me for being out. Unfortunately this is the app that the at home test walks you through and it is broken. Once you tell it that you have a blue and pink lime on your test that indicates it’s positive. The site loads indefinitely and doesn’t let you continue. Meaning I can’t get the documents I need to get paid for my job. Instead I have to find an alternative route which wasted time and money.
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Response from developer
Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue. Thank you, the CareEvolution MyDataHelps Support Team
Try
Where is the Apple Watch request
Wish I could show this app to all chronically ill people
This is seriously the perfect app for tracking symptoms, meds, and whatever else you want.
I can input whatever symptoms I want to and also add a severity scale if needed, I can track when I had doctor’s appointments or when it was raining, I can track medicine and my mood each day, AND I can print out a report of a month to show my doctor.
It’s awesome, and I also love the journal feature that adds an automatic time stamp because that way I can easily remember when in a day I last took a med. It’s great and super user friendly. I sound like I’m in an advertisement, I know, but I want everyone to know how awesome this app is.
I can input whatever symptoms I want to and also add a severity scale if needed, I can track when I had doctor’s appointments or when it was raining, I can track medicine and my mood each day, AND I can print out a report of a month to show my doctor.
It’s awesome, and I also love the journal feature that adds an automatic time stamp because that way I can easily remember when in a day I last took a med. It’s great and super user friendly. I sound like I’m in an advertisement, I know, but I want everyone to know how awesome this app is.
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Response from developer
Thank you for your feedback. We are so glad to hear that you are finding this app valuable!
App issue: no refresh, cannot access data
Hello,
In opening the app, it shows “asthma digital study” at the top and then just the spinning daisy. It stays there and never refreshes. When I click on Profile, it’s the same thing. I assume the app is unable to connect with the server. The app worked fine two weeks ago when last checked. Any help would be appreciated. Thank you.
In opening the app, it shows “asthma digital study” at the top and then just the spinning daisy. It stays there and never refreshes. When I click on Profile, it’s the same thing. I assume the app is unable to connect with the server. The app worked fine two weeks ago when last checked. Any help would be appreciated. Thank you.
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Response from developer
Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue. Thank you, the CareEvolution MyDataHelps Support Team
😞😞😞😞😞
App keeps crashing wont let me finish registration
App is not user friendly
The app says I have an activity, but I’ve completed everything yesterday. It has “Study Hotline” with a hyperlink that says “email us”…but that link doesn’t work.
Won’t let people add booster dates
I tried to add the date of my booster shot but the “done” button is greyed out and won’t submit the data. PLEASE FIX THIS
Covid booster
Many have had a third Covid vaccine. There’s no place to record it on My Data Helps. I’d think that would be relevant information.
Response from developer
We appreciate your valuable suggestion. We are working on an update to allow input of a booster COVID-19 vaccine.
Booster?
No way to add a booster
