Great resource!
Thank you Guthy Jackson for making it easy for NMO patients to find information we so desperately need!
Pain
I woke up paralyzed eight months ago. Flew to mayo. Took chemo and just learned to walk again
Great app!
Long overdue, but now it's here!
Awesome resource!
Great resource to have ready anytime - anywhere! Wish I had this last time I was in the ER - would've saved a lot it time! Not looking forward to the next time - but at least I will be better equipped.
Useful tools
This is a great app. Basic info, easy to understand/ use and will be great to see it grow. Would have given 5 stars if topics like "experts" "Facebook support groups" were more comprehensive and a little more useful (could be great if your American maybe? - The Australian links are definitely lacking).
Also if "notes" were interactive (not sure what they can be used for, mine is looking like a blog page that info can't be easily accessed/ searched later - search feature etc would be helpful).
And a section was added for personal medical stuff ie Dr, medications etc so it becomes a "go to app" for all things about NMO (especially for us NMO-ers).
Overall VERY happy that an app now exists about NMO. Thank you :)
Also if "notes" were interactive (not sure what they can be used for, mine is looking like a blog page that info can't be easily accessed/ searched later - search feature etc would be helpful).
And a section was added for personal medical stuff ie Dr, medications etc so it becomes a "go to app" for all things about NMO (especially for us NMO-ers).
Overall VERY happy that an app now exists about NMO. Thank you :)
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Great help for those affected by NMO!
This app is a great help and resource for patients and care givers of those affected by the rare disease, Neuromyelitis Optica (NMO). Thank you to the wonderful folks at The Guthy Jackson Charitable Foundation for putting this together. You can find videos about this disease, clinical trials, research & blood bank and it's an invaluable resource to help connect patients to doctors that treat NMO and support groups. I'm so grateful that we have this app!
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Brilliant Resource!
As an NMO patient, I am so very grateful that the GJCF created this outstanding NMO resource app for NMO patients, family members, and physicians! It is most comforting to know that if I experience an NMO attack, I have this excellent app to show and educate physicians in the emergency room treating me who may be unfamiliar with this rare neurological disease. This resource contains a wealth of useful and valuable information, and is organized in a format that is very easy to navigate. A superb NMO resource!
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Love It!
This app is amazing! You can enlarge the font. There is a section for notes--where I keep track of any new symptoms and it has any and all of the information you might want to share with a loved one condensed and at your fingertips. It's also an easy way to stay current with new developments, clinical trials, etc...
Thank you for this gem💫
Thank you for this gem💫
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Superb!
Tremendously valuable and easily accessible resource. Clean design and intuitive layout make it a joy to use. An exceptional tool.
