Diagnosed me with mild symptoms
My lungs have been affected, I’m on oxygen 24 hours. My kidneys have been affected, my functions have dropped, my Gastro system is a mess. The fact that none of this has been recognized leads me to believe this app is not for me.
Grateful for app!!
I’ve been sick for a few years, but it took a while for them to finally find that. But i’m grateful to finally know. But it is hard to process, especially when you’re in a flare. This app helps significantly.
Edit
Having trouble editing a journal entry
Some screens don’t format on an iPhone 14
It would be more useful if the “personalize your journey” would format on my iPhone 14. Lastly, I did an AI chat and they were supposed to send me recipes that would help my symptoms and then I couldn’t find the recipes on the app. I don’t think it’s worth $30 a year.
MEN GET THIS DISEASE
Why are we ignored
Response from developer
We hear you loud and clear. Sjögren’s affects men too, and feeling overlooked by the medical or support community is a barrier we’re committed to breaking down. We’ve made significant changes to ensure our content is inclusive of everyone living with this disease. Thank you for calling this out—your voice helps us ensure that no patient is left behind in our mission.
