MyDataHelps User Reviews

Top reviews

Great Symptom Tracker

I have multiple chronic and autoimmune conditions.I had been trying different symptom trackers looking for one that was easy to use and gave a usable record of my symptoms. Not only that, it interfaces with multiple longitudinal studies so my symptoms can contribute to studies looking to gather information and manage multiple diagnoses. Win/Win!
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Response from developer

We are so pleased to hear that you are finding our app to be advantageous for you! Thank you for letting us know.

Hard to delete the app

On the pregnancy plus app this app is advertised for you to get a free fitbit if you share your data and join a program.. i think its just for you to sign up. I want to delete my account but it makes it hard to do so. I emailed support and they say they withdrew me from the program but the app says im still apart of it.. its a waste of time other apps have more information than this. I feel played and i am still struggling on getting my account deleted.. smh
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Response from developer

Thank you for reaching out. Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue.

Best symptom journal app

This app is a dream for those with chronic illnesses. From the ease of merely tapping a symptom within Symptom Shark to the notices of energy output needed to complete a survey in Solve Together, this app is what I’ve been looking for. You can also print your data to take with you to the doctor. So easy!
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Response from developer

Thank you for your feedback and for your five star review. We are so glad to hear that you are finding this app valuable!

Wonderful to proactively participate!

This app combined with my Fitbit predicted my second case of Covid 19 BEFORE I felt ill enough to take a test. The app prompted me to test, based on the Fitbit info sent to it. I believe it was a rise in my resting heart rate and other sleep factors.
I was indeed positive and therefore was able to start Remdesivir right away. I am immunocompromised and my doctors wanted to be proactive about the disease.
The app is easy and a good way to track disease progression and also to track vaccination and testing.
The developers are definitely rockstars in my book.
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Colour is everything

I have Long Covid and have used many many symptom tracking apps and websites over the years. Most of them are monochrome and quite blocky to use-this one in contrast has shapes and custom colours which mean a whole lot more to me. They also mean it’s more friendly and less stressful and energy consuming to use!
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Loading error

This app worked great for a couple years but in the last few months it comes up with a loading error and is now unreliable.

Response from developer

Thank you for reaching out. Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue.

App is connected to dev environment

When I try to log in it tries to connect to “.dev” api.

Response from developer

Thank you for letting us know. Are you logging using https://mydatahelps.org/ or using the MyDataHelps app? If using one of these methods doesn't solve your problem, please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue. Thank you, the CareEvolution MyDataHelps Support Team

Don’t want me

After entering my contract info, they ask about COVID immunization. I have had two shots and three boosters. But the choices don’t have an option for boosters, so I chose “other.” After entering the date of my first COVID immunization it simply said I could not participate with no further information. I tried going back but the app won’t let you. So I deleted it.
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Response from developer

Your feedback is much appreciated; thank you.

More Covid vaccine data

Hi there, please add the ability to record additional Covid vaccine boosters to the app. As an immune compromised person we have additional Covid boosters taken over a regular person. The app only allows to add a total of 4 shots and I have 5 shots taken.

Thanks in advance!

Response from developer

Your feedback is valuable and much appreciated; thank you.

Broken

I got an at home rapid test and tested positive for covid. My job needs documentation to be able to pay me for being out. Unfortunately this is the app that the at home test walks you through and it is broken. Once you tell it that you have a blue and pink lime on your test that indicates it’s positive. The site loads indefinitely and doesn’t let you continue. Meaning I can’t get the documents I need to get paid for my job. Instead I have to find an alternative route which wasted time and money.
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Response from developer

Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue. Thank you, the CareEvolution MyDataHelps Support Team

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