All of Us Research User Reviews

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Leave a Review All of Us Research
  • All Of Us

    This is the worst group I think I’ve ever been a part of. They send you a Fitbit but then if you have an issue they don’t send you one that works so you can continue using it. I stopped wearing mine because of the issue. I got an Apple Watch and loving it. Take you scamming self somewhere else . I’m deleting you don’t send me anything else
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    Developer Response

    Fitbit supplies the Fitbit devices for our study participants. If you are having trouble with your Fitbit, you need to reach out to Fitbit. Thank you.
  • All of Us Study n Ed’s black e app

    Had great difficulty using this app for signing in and filling out surveys to participate in the All of Us research study. Was unable to sign in and complete multiple times. Upon going for my appointment to provide blood and iron sample for the study, found that I needed to use the blue All of Us app for my info. Ended up redoing all of my questionnaires the night before. At my appointment had to cancel my info on the white All of Us app.
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    Developer Response

    Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 to report the issue you had. The All of Us Research Program has two different apps available to participants. Navigate to https://platform.joinallofus.org/, this isalso a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project.
  • Nonstop Login Issues

    The All of Us Research Program has so much potential to be an incredible resource for so many people yet it’s plagued by technical difficulties. I know my password, I saved it in multiple places- yet cannot log in. I get auto generated texts and emails promoting new things however can NEVER gain access.

    Selecting ‘Forgot Password’ resulted in a long wait for the emailed verification code to appear (it never did), then to bypass that I selected it to be sent to my phone (it never came, either). What a waste of time and energy- to be sent on wild goose chases for for immensely valuable and important information that I desire.

    Another issue is not being findable to researchers. Earlier this year I was contacted by the local medical college and opted into the study, but for weird reasons they cannot access any of my information no matter what consent I provide. Being “signed up” through a university, the online platform, or the medical college shouldn’t be a barrier to participants and researchers.

    Customer service could be improved, greatly. In the past I was able to get a person to help me get an access code to login- but the system itself eventually locked me out at the next attempt. A different representative that (finally) emailed in response to my ‘contact us’ inquiry was short with me and didn’t seem patient enough to understand what I had described. No resolution. The phone representative was apologetic but unhelpful. No resolution.

    I’m considering unsubscribing from texts and emails because there’s no point in receiving communication that eventually directs me to login to my account.

    I really hope this gets figured out. I haven’t gained access to my profile in since 2022 because of this problem and from the looks of it- I won’t for the foreseeable future.
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    Developer Response

    We are sorry to hear that AoU support was unable to help you resolve your issue. Please send an email describing the issues you are having to mydatahelps-support@careevolution.com. If possible, please include the email address or phone number you used when you created your account. Thank you.
  • Wrong App

    Use the BLUE app, not this one.

    Developer Response

    The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants.
  • Leave it to the government

    To confuse everyone and waste money? 2 apps? Associated with the NIH which helps fund some Chinese research in the news last few years?
    I’m not giving my data to the NIH or government at this point. No thanks.

    Developer Response

    The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants. Regarding not being able to sign in, please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855.
  • Doesn’t work

    The other app for All of Us works, but doesn’t look as nice as this one. This one won’t even recognize me as a valid user. An error occurs. I am unable to sign into it.

    Developer Response

    The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants. Regarding not being able to sign in, please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855.
  • Says I don’t have an account

    This app says I don’t have an account but I do

    Developer Response

    Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 so that they can help you resolve the issue you are having.
  • Notification issue

    I downloaded the app, answered all my questions, linked my devices and accounts, and my saliva test is on its way. BUT, no matter what I do I end up with a red notification alert.

    Ok, maybe I’m a little OCD, I either turn off notifications for apps I don’t care about or clear them in apps that I do care about. I think I care about notifications in this app but being unable to clear this big red 1 is driving me nuts.

    I called in to clear up some other issues (btw the support is great—chat and calling options that don’t leave you waiting endlessly) but they couldn’t help me with this. I can’t imagine it’s anything other than some sort of glitch I’ve answered EVERYTHING! Please fix it.
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    Developer Response

    Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 so that they can help you resolve the issue you are having.
  • Not affiliated with joinallofus.org

    Why use their logo? This appears to be an imposter app. I have an existing All of Us account and this app doesn't recognize it, but the other app does, and it's by a different company which point you directly to joinallofus.org.

    Developer Response

    The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that CareEvolution All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants. If you have any further questions about this, please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855.
  • Genetic testing results

    I see you’re returning the results and desire me to schedule an appointment with a Genetic Counselor, but I don’t see how to do that.

    Please make it more Obvious.
    I’m excited to learn more…..

    Developer Response

    Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 so that they can help you resolve the issue you are having.

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