All of Us Research Program User Reviews

What users say

Top reviews

Terrible App

I had to call their support a couple of times already. This app keeps denying my password and I have to keep resetting. But if you reset from the app, it doesn’t send you an email to reset. You still have to call the hotline. Practically a useless app if you can’t even get in >90% of the time. This will be one of the biggest obstacles to making this research successful in terms of getting participants information updates on the go.
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Taking up massive amounts of space!

As a scientist myself, I wanted to help out and contribute to this research. However, after trying to figure out where all of the space on my phone went, I discovered this app was taking over 100GB! No, that is not a typo…100…GB. That is beyond insane and it was immediately deleted from my phone. I don’t know what could possibly be taking up that much room considering an entire iPhone update takes 5-10GB!
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Bad update

After an update the app won’t even open on my iPhone. iPhone is fully updated and is is software version. Most of the time it doesn’t make it past the apps first screen. Sometimes I am lucky and it goes to a blank white screen next. Tried to use app from web, and it keeps rerouting to app to finish doing things (like trying to connect EHRs) so I can’t actually complete what I’m doing. Has never worked well, but is now appearing fully inoperable lol. I desire wholeheartedly to contribute to research just let meeeeee :)
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Updated now won’t work

I updated my IPhone software today Also got a call from All of us research team so I opened the app to start the 2 new surveys except after I updated the All Of Us app Now it won’t open I’ve tried several different times today I just get that spinning daisy circle like it’s thinking or loading but it NEVER stops & opens the App so now it’s just stuck & I can’t get into to do the surveys. I wish I could maybe it needs an update to FIX the update???
Thanks
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Great Service and simple app that should not use so much data

I like All Of Us as what I rhink they are doing is very important. Syncing HealthKit data was easy. My only complaint is that overtime the app isn’t managing storage well. I recently checked and the app was using 50Gb of storage. Apps sometimes don’t data manage well but this was pretty bad. A simple deletion of the app and redownload solved the problem. Hopefully it was an isolated issue for me and/or one that the developers have or will solve in the future.
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Use blue All of Us app

Had difficulty using apps and was unsure which one to use. At my appointment for blood draw and providing iron sample discovered I needed to use the blue app. Wish it was clearer. I had to log in and cancel my info on white app. Had difficulty logging in so deleted both apps and then set up new account on blue app and had to redo all my questionnaires because it wasn’t showing up in there system when I used the white app.
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Buggy and excessive storage use

This app is using more storage than any other app on my phone over 18 GB of storage. I reached out to All of Us support about the excessive storage usage and they said it’s working as intended. Aside from this the app regularly logs me out and doesn’t seem to live up to its full potential.

Too many bugs

This app just has too many issues. First, the size of Documents & Data in the app keeps ballooning and is over 10gb. By far the most space taken by any app on my phone. Sometimes the app won’t open or just crashes. It is slow and laggy. Sometimes I’ll enter a form and then it pops up like I never did it at all. There isn’t much transparency on the status of anything or if you’ve done something wrong. I’d love to have confirmation that they will give me DNA results someday and that I won’t be ruled out just because the app messed something up.
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App taking up 16 gb of space on iPhone

App works ok but I just noticed it is consuming over 16gb of data space on my device. There is no option to delete data or clear cache on iOS. After contacting support it seems the only option is to delete the app 🙁

Was good

But then since the last update, I am not able to get anywhere with this app anymore. Was working fine a few weeks ago. What happened to this app?

Notifications still not fixed.

As reported by multiple users over the last several months, notifications cannot be cleared. If I get a notification, I’ll open the app and take care of whatever study information I choose to participate in. However, once I’ve seen the notification I cannot delete it from my inbox or turn off the notification icon on the app. I will be deleting the app from my iPhone until this is fixed. If that causes me to miss more studies so be it.
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Works only some of the time and you can’t clear the iOS notification indicator apparently.

I too can only get the app to load the majority of the time. It usually takes multiple hard killing/closing the app and then reopening to get your stuff to load.

I was notified this week that my DNA info was available. After going through each DNA section and doing my submissions I cannot clear the iOS notification indicator on the app. I’ve read all my messages/notifications within the app and have no other activities to complete. No matter what I do I cannot clear the flag - only turning notifications off seem to clear it. There should be a way to delete the messages within the app without having to turn off notifications entirely.
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App is buggy..

Sometimes you are able to log in and participate and other times you may have to delete the app and download it again for it to work. The fitness tracker part of the app doesn’t sync with Fitbit when it should. There’s are lapses of 10 days between my Fitbit info being updated and the app syncing

Good vibes so far

I joined this study to hopefully help myself and other in the future. I suffer from a few illnesses. I feel this app and the study is a beneficial for everyone. I was invited to try the Fitbit program. I’m new to this device. Upon set up I am curious to see my first set of results.
I did have a problem completing my Fitbit order. I called and although I can’t remember her name this employee was very patient, professional, extremely knowledgeable and had a great personality.
I will update my Fitbit experience after I get the hang of it.
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Program and team lacks integrity.

I was clearly lied to in order to get me to participate. I was lied to by the recruiter and during my donation, I was lied to by the individual who took my samples. I was told I would receive my complete gene report within 6-9 months of donating. This is the reason why I chose to participate. I was also told upon arrival I would receive my complete report in approximately 6 months. Obviously your recruiters and staff are incentivized to lie and greatly exaggerate or the program manager may be lying to staff members. The program lacks integrity. How can anything else be trusted
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Broken app

The app itself has yet to ever load after the first time I logged in. It doesn’t matter how many times I completely close out the app and realize it, how many times I reboot my phone or what updates come out. I cannot open the app and get anything to show up. I am always forced to go into a browser to check in and depending on what I do it will still try to kick back to the app and repeat the same blank loading pages.
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Hanging on app start

Latest update is hanging on app start on my iPhone 13 Pro.

Bogus genetic trait information

When I joined AllofUs, I thought it would be a win-win…I would help the project with medical discoveries and I would learn information that may significantly improve my health. I have many medical diagnoses. The genetic data that they have provided back to me is lame trait information such as ancestry locations (entirely misses my arctic and native ancestry),bitter taste perception, ear wax type, cilantro taste preference, lactose intolerance (basically things that I already know from lived experience). All in all, this is trait information that cannot help me improve my wellness. While I have not removed myself from the project, I will no longer advocate participation until I see evidence that they have a commitment to meaningful sharing of medical genetic information.
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Update

Great update-now I can’t see anything on the app.

All of us team doesn’t listen to users

1. There’s no support for HealthKit to sync lots of health data that would be useful for researchers.
2. They support Fitbit sync but not Apple Watch yet have a iOS app.
3. For appointments and measurements they have no locations in most states or areas.
4. Customer service is horrible at best