All Of Us
Response from developer
Fitbit supplies the Fitbit devices for our study participants. If you are having trouble with your Fitbit, you need to reach out to Fitbit. Thank you.
All of Us Study n Ed’s black e app
Response from developer
Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 to report the issue you had. The All of Us Research Program has two different apps available to participants. Navigate to https://platform.joinallofus.org/, this isalso a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project.
Nonstop Login Issues
Selecting ‘Forgot Password’ resulted in a long wait for the emailed verification code to appear (it never did), then to bypass that I selected it to be sent to my phone (it never came, either). What a waste of time and energy- to be sent on wild goose chases for for immensely valuable and important information that I desire.
Another issue is not being findable to researchers. Earlier this year I was contacted by the local medical college and opted into the study, but for weird reasons they cannot access any of my information no matter what consent I provide. Being “signed up” through a university, the online platform, or the medical college shouldn’t be a barrier to participants and researchers.
Customer service could be improved, greatly. In the past I was able to get a person to help me get an access code to login- but the system itself eventually locked me out at the next attempt. A different representative that (finally) emailed in response to my ‘contact us’ inquiry was short with me and didn’t seem patient enough to understand what I had described. No resolution. The phone representative was apologetic but unhelpful. No resolution.
I’m considering unsubscribing from texts and emails because there’s no point in receiving communication that eventually directs me to login to my account.
I really hope this gets figured out. I haven’t gained access to my profile in since 2022 because of this problem and from the looks of it- I won’t for the foreseeable future.
Response from developer
We are sorry to hear that AoU support was unable to help you resolve your issue. Please send an email describing the issues you are having to mydatahelps-support@careevolution.com. If possible, please include the email address or phone number you used when you created your account. Thank you.
Wrong App
Response from developer
The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants.
Leave it to the government
I’m not giving my data to the NIH or government at this point. No thanks.
Response from developer
The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants. Regarding not being able to sign in, please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855.
