All of Us Research User Reviews

Name: All of Us Research
Rating: 3.32759 (58 reviews)

All of Us Research

CareEvolution Inc.

💪 Health & Fitness

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All Of Us

This is the worst group I think I’ve ever been a part of. They send you a Fitbit but then if you have an issue they don’t send you one that works so you can continue using it. I stopped wearing mine because of the issue. I got an Apple Watch and loving it. Take you scamming self somewhere else . I’m deleting you don’t send me anything else

Navymama2385

2 years ago

Response from developer

Fitbit supplies the Fitbit devices for our study participants. If you are having trouble with your Fitbit, you need to reach out to Fitbit. Thank you.

All of Us Study n Ed’s black e app

Had great difficulty using this app for signing in and filling out surveys to participate in the All of Us research study. Was unable to sign in and complete multiple times. Upon going for my appointment to provide blood and iron sample for the study, found that I needed to use the blue All of Us app for my info. Ended up redoing all of my questionnaires the night before. At my appointment had to cancel my info on the white All of Us app.

Use blue All of Us app

2 years ago

Response from developer

Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 to report the issue you had. The All of Us Research Program has two different apps available to participants. Navigate to https://platform.joinallofus.org/, this isalso a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project.

Nonstop Login Issues

The All of Us Research Program has so much potential to be an incredible resource for so many people yet it’s plagued by technical difficulties. I know my password, I saved it in multiple places- yet cannot log in. I get auto generated texts and emails promoting new things however can NEVER gain access.

Selecting ‘Forgot Password’ resulted in a long wait for the emailed verification code to appear (it never did), then to bypass that I selected it to be sent to my phone (it never came, either). What a waste of time and energy- to be sent on wild goose chases for for immensely valuable and important information that I desire.

Another issue is not being findable to researchers. Earlier this year I was contacted by the local medical college and opted into the study, but for weird reasons they cannot access any of my information no matter what consent I provide. Being “signed up” through a university, the online platform, or the medical college shouldn’t be a barrier to participants and researchers.

Customer service could be improved, greatly. In the past I was able to get a person to help me get an access code to login- but the system itself eventually locked me out at the next attempt. A different representative that (finally) emailed in response to my ‘contact us’ inquiry was short with me and didn’t seem patient enough to understand what I had described. No resolution. The phone representative was apologetic but unhelpful. No resolution.

I’m considering unsubscribing from texts and emails because there’s no point in receiving communication that eventually directs me to login to my account.

I really hope this gets figured out. I haven’t gained access to my profile in since 2022 because of this problem and from the looks of it- I won’t for the foreseeable future.

TamsNT

3 years ago

Response from developer

We are sorry to hear that AoU support was unable to help you resolve your issue. Please send an email describing the issues you are having to mydatahelps-support@careevolution.com. If possible, please include the email address or phone number you used when you created your account. Thank you.

Wrong App

Use the BLUE app, not this one.

cnxih hsjkdkc

3 years ago

Response from developer

The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that our (CareEvolution) All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants.

Leave it to the government

To confuse everyone and waste money? 2 apps? Associated with the NIH which helps fund some Chinese research in the news last few years?
I’m not giving my data to the NIH or government at this point. No thanks.

Stwmmw

3 years ago

Response from developer

Doesn’t work

The other app for All of Us works, but doesn’t look as nice as this one. This one won’t even recognize me as a valid user. An error occurs. I am unable to sign into it.

HTcass

3 years ago

Response from developer

Says I don’t have an account

This app says I don’t have an account but I do

Bernadette Marbach

3 years ago

Response from developer

Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 so that they can help you resolve the issue you are having.

Notification issue

I downloaded the app, answered all my questions, linked my devices and accounts, and my saliva test is on its way. BUT, no matter what I do I end up with a red notification alert.

Ok, maybe I’m a little OCD, I either turn off notifications for apps I don’t care about or clear them in apps that I do care about. I think I care about notifications in this app but being unable to clear this big red 1 is driving me nuts.

I called in to clear up some other issues (btw the support is great—chat and calling options that don’t leave you waiting endlessly) but they couldn’t help me with this. I can’t imagine it’s anything other than some sort of glitch I’ve answered EVERYTHING! Please fix it.

BfromD

3 years ago

Response from developer

Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 so that they can help you resolve the issue you are having.

Not affiliated with joinallofus.org

Why use their logo? This appears to be an imposter app. I have an existing All of Us account and this app doesn't recognize it, but the other app does, and it's by a different company which point you directly to joinallofus.org.

pkeyrich

3 years ago

Response from developer

The All of Us Research Program has two different apps available to participants. If you navigate to https://platform.joinallofus.org/, you will see that it is also a National Institutes of Health website. This is the site that CareEvolution All of Us participants can use to participate in the project. CareEvolution also has a mobile All of Us app - for both iOS and Android participants. If you have any further questions about this, please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855.

Genetic testing results

I see you’re returning the results and desire me to schedule an appointment with a Genetic Counselor, but I don’t see how to do that.

Please make it more Obvious.
I’m excited to learn more…..

A Flower in the Wind

4 years ago

Response from developer

Thank you for reaching out to us. Please contact the All of Us research program support team at help@joinallofus.org or 1-844-842-2855 so that they can help you resolve the issue you are having.

Stop the insanity!!!

I now have two completely different all of us profiles one of which was suppose to be deleted and should’ve stopped gathering my information but it hasn’t and now I’m unable to attach my EHR to the one that’s actually active! I’ve called, emailed, and chatted with support multiple times and still can’t get this resolved. How can you all possibly be trusted with this type of information if this is how bad you are at managing profiles!!

Michael T 1976

4 years ago

Response from developer

Thank you for your feedback. We will reach out to the All of Us Support Team to see if there is something else they can try to remedy your issue.

Scam

I spent hours downloading and deleting this app bc I would spend all the time doing surveys and never did I get an option to receive a fit bit to track my activity very disappointed

daniellemarieann

5 years ago

Response from developer

Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue. Thank you, the CareEvolution Support Team

Wasted time

I spent all that time going through the consent and get to the “I’m done” page just to have the app quit on me.

bananaappleapple

5 years ago

Response from developer

Please send an email to mydatahelps-support@carevolution.com so that we can help resolve your issue. Thank you, the CareEvolution Support Team

Confusing 2nd app

Very confused why there are two All Of Us apps. I deleted the other one to try this which seems newer but when I tried to log in, this app said my account does not exist. Things should be better coordinated. The older app was mostly fine so I am going back to it.

Dini7775

5 years ago

Fake app after your data

According to the All of Us Research Program website "All of Us Research Program Selects Vibrent Health to Support Participant Technologies" which is the company that makes the OTHER APP. This app asks you to make a new account, and does not log into the real All of Us Research Program online account

Coolme1

5 years ago

Can’t use this...

Can’t login

moetjojo1

6 years ago

Great App

Amazing, innovative program in a quest to further medical research!

NicPho18

6 years ago

An app that gives back!!

What a great research study that connects individual health and genetics with science to give back by helping find treatments and cures with precision medicine. Happy to be apart of this program made easy to join via this app!!

cami-145789

6 years ago

Ambitious, lovely, and precise

This is an amazing program, ran by people with big hearts and big brains. Glad to be a part of it. Let’s transform healthcare for the next generation together!!

rnk3000