App sucks
I’m switching from Xyrem to Xywav and beyond frustrated to be told I’m required to download and use this app. Logically I get the surveillance for what the medication is, but the app is cumbersome to use and unrealistic. I’m in a holding pattern with my Xyrem having run out and still waiting more than a week and still no ETA when I can start Xywav. They expect us to record cataplexy attacks in this app which is unrealistic for me (I get 100+ episodes a day if unmedicated) but also the note taking function in the app does not save AT ALL. It’s wild to see this mentioned in other reviews of this app more than a year prior and here we are in mid 2026 and I can tell you it still doesn’t work. I can’t speak to the schedule or alarm function as I’m still waiting to receive the medication but based on the other reviews here, I’m not holding my breath!
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Miserable design for an important medical device
This app will NOT let me stay logged in. When I have to wake up in the middle of the night to log my second dose it’s logged my all the way out every time. It won’t let me save my login info to Passwords or Authenticator so I have to manually retype every. Single. Time. And then I have to wait for it to text me and type the code in every. Single. Time. It also won’t let me confirm my first shipment was sent so that basically defeats the purpose of using their app to track when I need refills. For a medication I NEED to take, this app is trash and needs major work
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great idea, terrible execution
this app has potential but currently, it's unusable. my provider requested that i use it to track my doses, but it logs you out every time you exit the app. it's not very fun to wake up at ungodly hours to log your dose, but have to log in with a bright white screen and do 2 factor authentication each time. on top of that, data will get randomly deleted. this app would've been great if it was coded by a competent developer.
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Keeps deleting my schedule
The app worked great for a while but eventually it started deleting my schedule everyday! It’s quite frustrating. If it worked properly, I would love the app.
Would be great
I think this app would be awesome if it worked like it is supposed to. I’ve reset my schedule almost 5 times and at this point I don’t even bother to because it deletes and makes me redo every 2-3 times I log in the app.
