Great for ME/CFS!
I’ve been sick for about four years. After using this app for almost a month, I have a better understanding of my baseline that I had in all of the four years going. Highly recommend!
JJoyously46
Beyond Grateful
I am honestly in happy tears how this app is helping me. I’ve had CFS for a very long time, and was struggling to understand the pattern that kept me only able to drive 1-2 days per month, and why after one day of being more active led to weeks of being bedbound. This app clearly showed me how severe PEM has been, and has given me hope that I can manage it better. I felt so overwhelmed for so many years, doctors and PT didn’t understand and gave me advice that made me worse, and I finally feel like I have real help now. I was struggling to pace all these years without this needed data. God bless the makers of this app.
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YYogatini
Interesting, Maybe
I was referred to this by someone with similar symptoms. It's a bit clunky to use -- not the most intuitive interface. It also records PEM, long crashes (days to weeks), and daily energy plummets strangely. I haven't quite figured out to record these properly, especially when there are multiple episodes simultaneously of multiple types. And the first week's predictions are simply awful. I've been in a 3 week crash layered with PEM episodes and daily energy crashes, so that's my baseline with the app -- which says that my metrics show no indication of risk of PEM while I'm up to my eyeballs with it. I'll trial it a bit longer, but I'm skeptical atm.
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LLaRubaGirl
This may be helpful
Finally may have found an app that will help me.
A steep learning curve and must get into the habit of daily journaling but that’s for my benefit.
Lots of support & assistance
A steep learning curve and must get into the habit of daily journaling but that’s for my benefit.
Lots of support & assistance
LLM@yh
Great app
This app is great for tracking and predicting crashes/PEM/fatigue. It takes data from your wearable and predicts how your days will be and whether to take things easy. After the initial input for the first 5 or 6 days after joining, it judges how you will be after you’ve passed your baselines. It’s been majorly accurate - even the past couple of weeks I haven’t entered my personal daily data, it’s still been accurate just connecting to my Apple Watch and tells me when I need to take it easy. Great app.
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T6Tinks 69
